Daniel Spils

Find other people with Alopecia Universalis (read all 10 entries…)
Bald to the bone
I’ve had Alopecia Universalis for 6 or 7 years—but I’ve only met a couple people with AU in that time period. Alopecia Universalis involves complete hair loss. There are three types of Alopecia :
  1. Alopecia Areata (patches of hair loss)
  2. Alopecia Totalis (no hair from the neck up)
  3. Alopecia Universalis (completely bald body)
I’m not looking for a support group so much as a group of people to discuss certain aspects of the disease and to get/give advice. My three biggest questions:
  1. What percentage of AU people get their hair back completely?
  2. Do others get baby hair in places (I get little blond hairs on the top of my head)?
  3. What percentage of the population has AU? I think it’s about 1 in 10,000 people.
The advice I’d like to give other people:
  • Taking 2,500mcg of Biotin a day has really helped the strength of my nails—amazing really
  • headbands work well for keeping the sweat out of your eyes when running or exercising – and bald people with headbands look cool in my opinion ;-)

Alopecians unite!

Dec 16, 2004, 02:11PM PST | 7 cheers


Comments:

Daniel Spils

Bald brother!

Great to hear from you, Clive. You succintly answered every question I’ve ever had about AU. Give biotin a try if your nails are weakened—it’s been a great help to me.

I agree that the first 3 months were an adjustment, but I’d never go back at this point. Being bald has been a nice change for me—and yes it makes you a bit more memorable.

Thanks for taking the time to respond to my post. Hopefully others will find this little corner of the internet.

Jun 09, 2005, 03:02PM PDT | Parent | Respond to this

skinsmith

Bald and Loving It

I am bald by choice, but it is because I started to loose a spot on the side of my head…and other spots on my chest and an area on my leg…I have since regrown those spots except the head. At one point my brows thinned, but they have since returned with a vengence. I shaved them off a couple of times, but they seem stable now. My nails went through a brittle stage, but seem to be normalizing, especially on my hands. I was never diagnosed with Alopecia(my doctor wasn’t sure), but it seems I have had some similar occurances. I tweeze my scalp, so am hairlesss because of that, but I love the bald head look so I am content to stay that way. You really look fantastic hairless! It is who you are and you should flaunt it proudly! I am certain you do!

Jul 11, 2005, 08:34PM PDT | Respond to this


 

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