Find other people with Alopecia Universalis (read all 10 entries…)
Bald to the bone
I’ve had Alopecia Universalis for 6 or 7 years—but I’ve only met a couple people with AU in that time period. Alopecia Universalis involves complete hair loss. There are three types of Alopecia :
  1. Alopecia Areata (patches of hair loss)
  2. Alopecia Totalis (no hair from the neck up)
  3. Alopecia Universalis (completely bald body)
I’m not looking for a support group so much as a group of people to discuss certain aspects of the disease and to get/give advice. My three biggest questions:
  1. What percentage of AU people get their hair back completely?
  2. Do others get baby hair in places (I get little blond hairs on the top of my head)?
  3. What percentage of the population has AU? I think it’s about 1 in 10,000 people.
The advice I’d like to give other people:
  • Taking 2,500mcg of Biotin a day has really helped the strength of my nails—amazing really
  • headbands work well for keeping the sweat out of your eyes when running or exercising – and bald people with headbands look cool in my opinion ;-)

Alopecians unite!



Comments:

Bald to the bone in Bulgaria

Hello Friends,

I’ve lost my hair 9 months ago. It is Alopecia Universalis! I won’t say about all the depression I was into but I am getting mad for another thing! The most terrible thing is not understing to the problem in my country. I can’t find work. Even with wearing a wig, once they learn about they stop calling you. What is our fault about? Does anyone knows International site for us or fondation to take care for and giving us a chance? I still have my 8 years old boy to take care for and being without work can be awful…I will be thankful if someone can help me with a link!

Welcome

Sorry to hear that employers are discriminating against you based on your baldness. How silly is that?

I think you look great! The English site/foundation I’m most familiar with is NAAF. They tend to have the most information and resources. Perhaps there’s a chapter in Bulgaria.

Alopecia Universalis takes some adjustment time, but you’re totally healthy and people have to become accustomed to your new look. Good luck and remember this: women look great bald, too. I bumped into a attractive 27 year old Alopecia Unversalis gal in California a few months back. She didn’t wear a wig and she looked gorgeous. Tell that to your next prospective employer!

Wow

Thank you for the kind e-mail! Please don’t forget that I am wearing a wig here! But anyway it was very sweet of you, I will try the link and see…
thank you again good luck and all the best to you!

heya

heya im 14 i tried getting a job in the leisureplex in dublin/ireland!!!n they took me on but after a while i had to put my hair up in a hairnet n im not able te do tat…..it was such a gr8 job had such nice people there but i had to give it up bcoz i was not able te go into the kitchens!!!i h8d tat part it not our fault we av au!!!!!!!!but ah well!!!im not able te help u wit a link tho!!!!xxx

Miserable..........

I have had Alopecia Universalis for 15 years….One day I was taking a shower…and I got out, looked in the mirror, and ALL OF MY HAIR WAS GONE…...(

I was getting ready to go to my job as a TV on-air Meteorologist…in a U.S. city….I was on the news, as the morning and noon TV Meteorologist, for the TV station..

To say the least…I could not keep my job (I was in shock)..and 15 years later…after bouts with severe depression, panic attacks, thyroid problems, and an almost killer heart event…I am in MISERY….

I was a very good looking guy…had a great life…......NOW, I am ALL ALONE, no friends, no career, no money, no car, my family has deserted me, and I have ZERO confidence…I might as well be gone from this planet…I have “no life”....This is the wost thing that could have ever happened to me !! IF I lost my legs, I would be in better shape….My looks and appearance were so important to me (my career and myself).....I am not vein….I have BDD (Body Dismophic Disorder)...and I focused all my attention on my HAIR, for my whole life…It, always, had to look perfect…BDD is , actually, a mental condition in the DSM-IV psychiatric handbook….Many people who have several plastic surgeries have it….

So, I am ALONE , again, TODAY…and everyday..MY life is ruined and I couldn’t be more lonely and “destroyed”.......I have no idea what to do…I have tried everything…I do wear a wig….and I use make-up to draw in eyebrows….but, it is very hard to live DAY to DAY…....I am sorry if I sounded so HORRIBLE…but, I feel horrible…...........


 

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