Daniel Spils

Find other people with Alopecia Universalis (read all 10 entries…)
Bald to the bone
I’ve had Alopecia Universalis for 6 or 7 years—but I’ve only met a couple people with AU in that time period. Alopecia Universalis involves complete hair loss. There are three types of Alopecia :
  1. Alopecia Areata (patches of hair loss)
  2. Alopecia Totalis (no hair from the neck up)
  3. Alopecia Universalis (completely bald body)
I’m not looking for a support group so much as a group of people to discuss certain aspects of the disease and to get/give advice. My three biggest questions:
  1. What percentage of AU people get their hair back completely?
  2. Do others get baby hair in places (I get little blond hairs on the top of my head)?
  3. What percentage of the population has AU? I think it’s about 1 in 10,000 people.
The advice I’d like to give other people:
  • Taking 2,500mcg of Biotin a day has really helped the strength of my nails—amazing really
  • headbands work well for keeping the sweat out of your eyes when running or exercising – and bald people with headbands look cool in my opinion ;-)

Alopecians unite!

Dec 16, 2004, 02:11PM PST | 7 cheers


Comments:

Daniel Spils

Welcome

Sorry to hear that employers are discriminating against you based on your baldness. How silly is that?

I think you look great! The English site/foundation I’m most familiar with is NAAF. They tend to have the most information and resources. Perhaps there’s a chapter in Bulgaria.

Alopecia Universalis takes some adjustment time, but you’re totally healthy and people have to become accustomed to your new look. Good luck and remember this: women look great bald, too. I bumped into a attractive 27 year old Alopecia Unversalis gal in California a few months back. She didn’t wear a wig and she looked gorgeous. Tell that to your next prospective employer!

Feb 14, 2006, 02:42PM PST | Parent | Respond to this

Tenderheart78

Wow

Thank you for the kind e-mail! Please don’t forget that I am wearing a wig here! But anyway it was very sweet of you, I will try the link and see…
thank you again good luck and all the best to you!

Feb 14, 2006, 03:13PM PST | Respond to this


 

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