attend my 20 year West High School reunion in Anchorage, Alaska (read all 2 entries…)
Arthritis Walk 3 years ago

I know you are all busy, but since it is one of my goals, I thought I’d try to spread the word. If you read my earlier post, you’ll know that my 7 year old son has Juvenile Rheumatoid Arthritis. He has had it for over 2 years now and has only had two flare ups.

To give you an idea of how this affects kids…Joshua’s right wrist was fused together. He couldn’t bend it up at all. His right knee was very swollen and his right leg grew longer than his left. He was taking 7 tsps of ibuprofen a day plus 6 ml of Methotrexate (chemo drug) once a week. He cannot walk long distances and tires easily. Obviously this is tough on any kid and his case is average. There are kids out there that are confined to wheelchairs and worse.

We are blessed because Joshua has been able to take a new medication (Enbrel) and our insurance covers it. It is given by injection once a week and has done wonders for Joshua. However there are many other children that can’t. It is an extremely expensive medication.

If you can make the time and would be willing (all you 10k runners…) please take a look at this site: http://www.arthritis.org/events/arthritiswalk/default.asp and see if you would like to participate in the Arthritis Walk.

I and many others would truly appreciate your participation!

Thanks!



Comments:

Fantastic Goal with great hope!

My cousin Kelly had Juvenile Rheumatoid Arthritis since 4/5 years old and went through the same struggle your son is experiencing. As we grew up there were several medivacs to Seattle and very scarey times. She is now 32 years old, has a Masters in Biology and works full time in a lab. Two years ago she started the new medication (I think the same one) and actually walked the 10K with her husband. She is an inspiration to our entire family – she lives with arthritis everyday and has survived. I am going to see her next month and will tell her about this site. She would be a wonderful contact for your family.
We sponsor this every year and I will spread the word in SLO….Good luck and see you in August!


 

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