Stop being in pain
Definition

What I mean about “pain” is not a headache or what most people define as pain. No over-the-counter meds have helped me and I’m seeing a specialist at a Pain Clinic about it.

It goes almost 10 years back in time. Started as a burning pain in the skin after a hysterectomy. The reason for the hysterectomy was cancer.
Since then the pain have gone deeper and today it is like a roaring flame that burns all the way down to the bone. It’s not constant – yet – it comes and goes and can last anything from a few moments to weeks. Sometimes it’s constant, sometimes it’s stabbing.

The specialist pretty much agreed with me that I have some sort of nerv damage after the hysterectomy, but since I am epileptic he wants to look into that too.
Obviously, the meds I’m on for the epilepsy is what they prescribe for nerv pain. So in theory I shouldn’t hurt at all.

There are other things they can do about this though.
Nerv blocks is one of them and I can’t say that I’m comfortable with the thought of someone digging with a knife in my neck among all the nervs that are gathered in there. But if that’s the only solution, I will take it.

It’s difficult to explain how it effects me, but I am aware of that I get very snappy and short tempered during the times when I’m hurting. The skin gets hyper sensitive and even clothes will hurt. Showers are a nightmare because of the changes in temperature that occures.
If you can imagine being without skin, I think you’re close to understanding. That’s the best way to describe it. And it’s been spreading to pretty much every part of my body today.

Today I’m getting through the painful days by drinking way too much of Southern Comfort….or whatever I have nearby with alcohol in it. In the long run it’s not a good thing, but for now it’ll block my mind from the rest of me. Since I have epilepsy there’s side effects if I drink too much alcohol, so it becomes a bad circle.

If the hysterectomy caused this, it’s pretty ironic, coz it saved my life and pushed me straight into this very painful state.

If there’s anyone out there with the same problem, please let me know. I’m not the only one with chronical pain, but most people don’t talk about it.



Comments:

i know exactly how u feel.

i am 27 years old and just had my 3rd child in january by c-section where at the same time thay did a tubal ligation, i had that same exact burning sensation on each of my sides (where my ovaries are) i kepty telling my doctor that i knew something was wrong cause everyone else i knew that had a tubal never had this pain i was experiencing, my doctors said it was fine and normal , i would be feeling better within weeks, well the weeks turned into months and i fianally had a hysterectomy two weeks ago becuase of the pain ( the doctors thought it was endometriosis) well that didn’t fix the problem either, finally i switched doctors( the previous ones were calling me a pain pill addict and said i was making up the pain to get pills) i told the new doctor everything i have been through and explained the pain to him and he automatically said it was nerv damage why my others docs never caught on i will never know, i just started taking neurontin and i am praying every day that it will help so i can get back to my normal life and start being able to do things with my 2 boys and my baby girl…i am so happy i found ur website cause i thought i was only one with this problem, if u have any feedback on my story please email me at brxty26@netzero.com

I will....

...email you. This is more common than even than a regular doc knows, but unfortunately they are not educated to deal with it yet.

More in the email.

C.

No you aren't alone Christa

I work in a clinic for chronic pain patients…and I can promise you that you are not alone. As a matter of fact my own DD is a patient (and works here too) of our office for nerve pain in her knee. I hope that you have a good support system around you to help you deal with this, I know it is not easy. (((HUGS))) to you.

Sherlock is slapping down the grant reviews...

Christa,

This pain sounds horrible. Do you have the ability to go to a pain clinic? I have had chronic pain for 6 years, and I know how it can wear you down. You just have to have some level of relief.

I am treated by a good pain doc now, and with some recent changes in my meds, I have about 85% control of my pain. This is great. At one point, I thought I would never work, interact, do anything but moan again.

There are good meds, but you need someone knowledgeable about how to use them. If you want more info about pain centers I know about, let me know—I’ll send you an email address if needed. Nobody should have to live like this.

Hang in….Sherlock


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