CropTillDawn~ Fragile? Must be Italian!

manage my fibromyalgia (read all 14 entries…)
I'm a bit freaked out 2 years ago

I just went to an open house to see one of my creative memories friends who I have not spoken to in a while. Her Mom had FM also and she just passed away in March at the age of 60. I asked if she had Lupus and she said she did not. It is all so messed up! She also saw one of the Dr’s I saw for the Guifenisen therapy and did get some relief.I went for 2 years and did not. She also started having symptoms at the age of 30 just like I did. I guess the last time we spoke I was still at the point where they still thought that I was Chronic Fatigue because my pain still had not kicked in because I was still teaching classes. There are so many wonderful people I have stopped talking to since my health went down hill because I just hate hearing the simple question,”How are you doing?” Now I just say,”Hanging in there” When I really want to say,”I feel like $h!+. How are you doing?” :)
It really was good seeing her and I plan on keeping in touch. I also met some other nice women while I was at the open house today too I will be contacting more people I have not spoken to in a while.



Comments:

I’m glad you can find other people for support who have gone through the same thing… It’s going to be very difficult, but it will be that much easier knowing that you can talk to other people who really understand.

CropTillDawn~ Fragile? Must be Italian!

Thanks,

It was very helpful knowing that my husband did believe me. There is not any test you can take. It is all based on symptoms. Even then it has not been easy for him having to more and more around the house and with the kids.
I don’t think he realized how much I had spoiled him.
Some days can be very hard for us still.

I’m glad that your husband supports you in this. I know it can be really difficult when you are experiencing something that cannot be conclusively diagnosed!


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