Jamie A.K.A. Poetry Boy misses everyone very much

Get over my fears and anxieties about going to the doctor and actually go get the medical treatment that I need. (read all 16 entries…)
MRI Problems 3 months ago

I didn’t have my MRI today. I had two panic attacks in the machine. I had one when they put me in the first time, and they took me out right away. It felt like the walls of the machine were squeezing me and I had trouble breathing. They asked me if I wanted to try again and I agreed to. I had another panic attack as soon as I got put into place and this time I ripped my IV out and started trying to move around, even trying to sit up. They had to take me out again. I was breathing like I was drowning. They told me that I will have to resechedule and have it with sedation and arrange for someone to drive me home to have one there. Then, the nurse told me to get dressed and go and left me there still shaking and struggling to breathe. She even left my blood on me from where I pulled the IV out. When, I got in the car to go home, I had a third anxiety attack and started to have a fourth one in the shower at home.

I tried to be brave and strong. I even let them me put me in there again after the first one. I tried to be brave, but I failed at it in the end. I fought to get this test and then I couldn’t have it. I’m embarrassed all of this, not to mention disappointed in myself, though not as much as I was earlier.

I don’t know what this means for my doctor visit on Monday. Mom told me that there are other tests the doctor can order can order, like a CT Scan or maybe she can get the insurance to approve an Open MRI, even though the hospital doesn’t have one and I would have to go elsewhere. Mom said I might not even need it now depending on what the other tests showed. I hope one of those things is true because I am not getting in that machine again.



Comments:

New Isabella What am I doing today?

Dear Jamie,

Don’t be too embarrassed or too hard on yourself. You are certainly not the only one to have problems with an MRI. I’ve heard other stories about people I know who couldn’t get through the procedure either. My dad had problems with it. And last May, MamaKitty was unable to get through her first MRI. I went back through her entries and found her thread here.

I think it’s brave of you to write about your problems here. And I hope that, in spite of this setback, your doctors can diagnose what’s going on with you and find a way to help you feel better.

((((hugs))))

Jamie A.K.A. Poetry Boy misses everyone very much

Thank You, New Isabella

Every story I learn about someone who has had problems with getting an MRI really helps. I don’t feel nearly as embarrassed about it now as I did on Friday.

I’ll find out tomorrow how or if my doctor can work around that and/or get pictures another way. I really hope she can. I’ve had two other panic attacks related to it since I wrote this on Friday evening. I just can’t see me getting in it again.

New Isabella What am I doing today?

It's Monday morning...

I’m hoping you get some answers today, too.

(((hugs)))

Jamie A.K.A. Poetry Boy misses everyone very much

Thank you

whatever happens, I’ll post an update later today.

I’ve seen enough with my Mom to know that I may very well not get any answers, but I am hoping that today the mystery of why I’ve had so much pain for years is finally solved.

Jamie A.K.A. Poetry Boy misses everyone very much

Thank you

whatever happens, I’ll post an update later today.

I’ve seen enough with my Mom to know that I may very well not get any answers, but I am hoping that today the mystery of why I’ve had so much pain for years is finally solved.

Uncle Enore is sending brain healing rays to the NakedDumbass

Well, if you DO get answers today...

...why would they have ordered an MRI?

It would seem like that’s a pretty big and important, to say nothing of expensive, test to order if they didn’t need it, no?

Uncle Enore is sending brain healing rays to the NakedDumbass

...sigh…

Oh Jamie

I’m sorry. That sounds awful. Poor baby.

Kel

Sorry you went through such a

bad experience.

Failure, disappointment, & embarrassment have no place with regard to panic & anxiety attacks, esp. w/people in a medical setting who (should) understand them well. You know the attacks have nothing to do with will power, bravery, or strength, even if it’s hard not to fall prey to blaming oneself.

Hopefully, your appt tomorrow will be helpful.

God knows, you’re continuing to show bravery, strength, & determination! No one else but you know how hard things have been so far – so pat yourself on the back, dammit! :)

Jamie A.K.A. Poetry Boy misses everyone very much

I do know those things

Intellectually speaking, I know that everything you post here is true. I also know that I’ve done my best.

Emotionally, though I just felt so upset with myself, even if it was beyond my control. I know it was dangerous for me to stay in the machine under the conditions and probably even more so for me to try a third time. However, I still felt very much like I had blown it and that I had let a whole lot of people down, starting with myself.

However, as I said, I do know that you are right and that I should be proud of myself for everything that I have done in facing all of this. It is with deep appreciation that I thank you for reminding me of all of these things.

Kel

Keep

all this stuff in mind, because I may need you to remind ME sometime, okay?

Jamie A.K.A. Poetry Boy misses everyone very much

You got a deal

You can count on it. I would be pleased to remind you of these things when you need to hear them.

Uncle Enore is sending brain healing rays to the NakedDumbass

I have absolutely NO understanding...

...of panic attacks, at least personally, so I don’t know how they can be. I don’t know what you felt, how you felt it, or why. And I’m more sorry you didn’t get your test than I am about you being embarrassed about all the hoopla.

And yet…

I have a Don Martin version of your episode in my head, with you all arms and legs and big ole head, tongue flailing, ripping out IV’s, and scrambling to get off that table, hair askew with your ‘tard football helmet flying off and hitting a tech in the face…LOL…it just makes me laugh till I’m nearly in tears…LOL

Well, hell, you ought to look on all sides of this, no?

HippieChick is . . .

Well actually when you are having an anxiety attack

none of those things happen. You actually become kind of imobilized. You think you are having a heart attack. You are having heart palpitations, feel like there is a vice grip on your head and can break out into a cold sweat etc. Or maybe just the heart palpitaions and or the head vice grip thing, either way you think you are dying.

I have them on occasion . . . not fun and it seems that most times people around me don’t necessarily know anything is happening, but I feel like I might pass out. The fist time I ever had one was the morning my last baby was born. I was having a caesarian delivery. It was planned. I had one before so I knew what was going to happen and what was happening, but in the background I heard someone ask if the “back up blood supply was in place” which would be a typical procedure, yet when I heard that . . . instant panic. The anesthesiologist noticed something in my expression, but that was it. He asked if I was O.K. as I looked slightly distressed, but I couldn’t even answer him. The only thing that brought me in off the ledge that morning was when my husband came in and sat by my head and talked to me.

I have since had them periodically when I am extremely stressed. That is why God gave us Xanax . . . Thank you!!!

lovingmex43 can't seem to beat this depression

have you looked into

and Open MRI? There are a lot of peol who can’t get into those machines. They do have open ones and you may have to travel a bit to get to one but if it is a necessary test then perhaps it would be worth it.

Jamie A.K.A. Poetry Boy misses everyone very much

I have indeed

In fact, it is my first choice, if it can happen. We have an Open MRI machine here in Lexington. In fact, it is even closer to me than the hospital is, a mere 3 minute drive from my apartment.

The downside is my insurance does not cover procedures noto done at UK hospital. So, I need a doctor to request they make an exception and explain why it is needed. That is one of the things on my agenda for my visit with my GP next week, assuming I can get an appointment

lovingmex43 can't seem to beat this depression

Yes, you should

remind yourself of how brave you have been and how far you have come. I am proud of you Jamie.

Pyxidragon is still laughing about all the mishaps at work today

(((Jamie)))

I’m sorry you had a time of it, darlin.

And yeah, it’s natural to be worried in anticipation of what’s bad news. I do it all the time.

But, Lady love ya’, you’ve done good so far and you just need to kick this darn thing in the teeth. Let the doc tell you what s/he’s going to and then figure out a plan of attack from there.

(Oh good gravy…I just realized I agreed with Uncle.)

Uncle Enore is sending brain healing rays to the NakedDumbass

LOL!

And rightly so!

Kitty why am I soooo tired?

oh sweetheart

I’m so sorry this is so difficult for you. I wish I lived near you so that I could hold your hand and be there for you.

....I also wish that one of the people who are supposed to be friends of yours could be real friends and that you could depend on them to listen to you and talk you through these things. It’s not the same to have supportive people on the internet. We still need people in real life.

...want to see the dr in nyc? ;)

Jamie A.K.A. Poetry Boy misses everyone very much

If it meant

you would be there with me, I would love to see the doctor in New York.

I posted a comment somewhere last week about how tired I am of my friends not supporitng me and leaving me to do this by myself. You’re right that it’s not the same. One of my friends did call me on Saturday, but he lives in Nashville. I really need someone here in Lexington to start acting like a friend and make it so that I don’t have to do all of this by myself.

Kitty why am I soooo tired?

of course I’d go with you if you came to a doc here.

You should say something to your friends. Give them the opportunity to be more supportive by telling them it would really help if they gave you more support.

If they chose not to after you make it clear that you do need them, then just tell them to take a hike.

Jamie A.K.A. Poetry Boy misses everyone very much

I did tell them

and gave them the chance to be more supportive.

Things like watching the Olympics and sleeping later than my 10:45 appointment took precedence. I’ve tried to get people to be more supportive of me by asking people if we could talk about what is going on with me, nothing outside of my friend in Nashville.

Unc’s assessment of them from last week that they are a bunch of assholes is right on the money.

Tink is beaming love and light toward Gemm and Jamie.

I don't understand...

...how these people look at themselves in the mirror in the morning.

I’d do this for a neighbour I scarcely know, if I knew that he was otherwise going to have to cope alone.

And even if I somehow did decide that something trivial like extra sleep or watching the %$@# Olympics was higher on my priority list, I’d at least be embarrassed enough to give a more legitimate-sounding reason.

Grrrrrrrrrrrrr.

Uncle Enore is sending brain healing rays to the NakedDumbass

It gives me no pleasure...

...to know I was right.

HippieChick is . . .

O.K., so I guess the Hippiechick

has to come to Kentucky and help you through this as your local friends are too busy. Do you mind if I pass through Springfield on the way to Kentucky? I will bring my Mom with me and we will pick up my Aunt. That way you will recognize me whern I arrive . . . the Hippiechick shuffling the two old ladies.

;)

Uncle Enore is sending brain healing rays to the NakedDumbass

Let me "devil's advocate" this for just a minute.

You’re a big boy now, Jamie. You’re just going to the doctor, for Christ’s sake, and most of the time nothing happens when you get there, anyway. I mean, really, since you originally saw the neurologist, what has happened? Nothing but some memory games with someone. That’s it. What’s the big deal?

Jamie A.K.A. Poetry Boy misses everyone very much

Unc, I know you want to help

and I do like that you are willing to joke with me about this. I even laugh at most of them, whether I respond or not. I appreciate your willingness to challenge me and try and keep me from allowing myself to become a victim. I also don’t want to suggest that sympathy is the only way to support me or that I even expect it from anyone. You do support me because I know you care. I’m not asking you to change the way you approach me at all, but I do have some things I need to make sure you see.

I don’t mean any of this as condescending or pissy or thin lipped or anything like that, and again, I know you are trying to help. I’m just explaining why I’m not who you seem to want me to be right now.

I’m glad that your MRI was not scary to you, but mine was to me. I honestly believed I was going to die in that machine. I know that may not seem rational to you, but it’s how I reacted to it. It felt like I was being burried alive. I’m glad that my tests would be no big deal to you, but they have been to me. I’m glad thar my neuropsych test would be a few memory tricks to you, but it was a big deal to me. My impression is that you think you know exactly what I am going through, but you don’t. Nobody knows exactly what my body and my mind are doing and how I am dealing with it, but me. I wish I could explain what’s going on in my head better to help you understand, but every time I try, I don’t seem to get it right.

I know I am not responding to any of this the way you think I should. I know I don’t feel about any of this the way you think I should. But you are not me. I am wired differently than you are and I deal with things differently than you do. I feel about things the way that I do.

I hope that someday I can develop more of a sense of humor about all of this, though many people have commented to me that they are stunned at how well I can see the humor in all of this. I hope someday I see this as no big deal and can deal with it from a position of strength. I hope someday I can view learning that none of my friends here care enough to help me at the moment I need them most as a good thing or family members who have always been close to me being there for me as something I have no right to expect. I hope I can do all of those things, but right now I can’t completely. I’m not giving up or just throwing my hands up. I’m working on it, but I move at a different pace than you do.

I can see how I may come across as weak or childish or lots of other things in that realm. I can see how you could be disappointed in me or tired of listening to me whine about all of this. I’m trying to toughen up about all of this. I’m trying to face my fears that the physical and mental losses that I’ve experienced could be permanent. I’m trying to find the humor in possibly never getting any of those things back. I’m trying to deal with the anxiety that has taken hold of me since last Friday should I be left with no choice but to get in the MRI machine again. I’m trying to view the confirmation that I have nobody in this entire city I can count on as being in a position of strength. I’m trying to do all of those things. I’m doing my best. I’m spending every day trying to get through all of this the best way that I can based on where I am right now. I’ll get to those places of strength you are trying to get me to, but it’s going to take me some time. Please have patience with me, my friend.

HippieChick is . . .

Good Job Jamie!!!

I have never had an MRI, but I did have a total of 40 sessions in a Hyperbaric Chamber. That was a real bitch. It was uncomfortable for one thing because of the pressure and even though it was a clear acrylic vessel, it still made me claustrophobic as there was no way to get out unless the technician took me out she had to depressurize the chamber first so if I HAD to get out, it would have taken her about 15 minutes to get me out. Each session was 2 hours long. I had to take some valium each time before I went in so I could sleep through the whole thing. I hated that sucker, except that it did help my foot heal though. (This was during the pseudomoneaus infection time and the IV meds)

It was so hard to make myself go there everyday. So hard.

Uncle Enore is sending brain healing rays to the NakedDumbass

Ok.

Tink is beaming love and light toward Gemm and Jamie.

Unc, I've already responded at length...

...below, under your comment about how MRIs don’t scare you. So this is really a P.S.

I realize that this is just your “devil’s advocate” side, and in fact I’ve seen you demonstrate enormous support for Jamie and all he’s going through – as well as for me (retroactively), and for Chewie, and others who are struggling with health issues.

Even occasionally for yourself.

I’m just a bit puzzled, though, because – and I trust that you’ll correct me if I’m wrong – I’m having a hard time believing that you’d ever say anything like this to, say, Jeny or Seren or Chewie or me. “You’re a big girl now…What’s the big deal?” And the common denominator among the people I can’t imagine you saying this to is that we’re all female.

So I’m wondering if this flavour of response is coming out because Jamie’s a man, and somehow you therefore expect him either not to have such fears or not to express them?

I’m all for not having our fears run our lives. But that’s not what I’m seeing. I see Jamie having his fears (and his sadness about learning who he can’t count on among people he believed were his friends) and carrying on anyway.

In fact, my own definition of courage doesn’t include not having fear. I see Jamie being extraordinarily brave through all of this.

Having a full range of feelings – and acknowledging them (even the ones we’re not entirely proud of) in public – is to me a vastly braver act than enduring any number of MRIs without flinching. It takes enormous courage, and it wins my undying admiration.

Uncle Enore is sending brain healing rays to the NakedDumbass

Yes, Tink, you're exactly right.

I’m a sexist.

Perfect.

That is just exactly what anyone would take away from my comments and my attitude.

I’ve tried to hide it, but I ain’t slick enough to fool you.

Jessy is stressed

Jamie, MRIs are scary

to most people. And you were brave to go back in there.

But panic attacks trigger the “flight” part of that primal “flight or fight” syndrome, and bravery is generally not an option against them.

You know, I would think that as scary as MRIs are, they’d give you (and by you I mean everyone) a little tranquilizer first.

Hugs, Jamie!

Uncle Enore is sending brain healing rays to the NakedDumbass

Scary?

I had a couple just a couple months ago and I didn’t see a thing scary about them. I dozed for half an hour and went home.

Jessy is stressed

Unc, you apparently

have nerves of steel. Pfft, you have never even had a panic attack!

What about the noise? That bothers most people. You were probably not even fazed.

So be gone with your bad self . . . go play with some Kryptonite or something.

Tink is beaming love and light toward Gemm and Jamie.

Jesus, Unc! Remind me...

...never again to tell you that anything frightens me.

Because I sure as hell wouldn’t appreciate having my fears dismissed merely because whatever I’m nervous about doesn’t scare you. People who tell me stuff like that don’t get to be around me when I’m feeling vulnerable. They can still be my friends, but I will stop showing them all of who I am, since apparently they judge me as somehow inferior for having a fear or fears that they don’t happen to share. and the last thing I think is helpful when I’m vulnerable is to be judged for it.

Your MRI was your MRI. Mine – which also wasn’t difficult for me – was mine. Jamie’s was not yours or mine: it was Jamie’s. On top of being anxious about the results and about the test itself (because he knew going into it that he has sometimes had trouble in tightly enclosed spaces), the guy’s in constant pain – not to mention seriously sleep-deprived. I cut him a lot of slack for that alone.

Had someone accompanied him to the MRI, he could have been sedated for it, which might have allowed him to get through it.

Me, I’ve been sedated for every colonscopy I’ve ever had.

And I wish I’d been massively sedated for the abdominal CT scan I had to have a week before the surgery last December. As it was, when I learned (minutes before the test) exactly what was going to be expected of me – and that I’d have to endure this particularly hellish experience without even mild sedation (because I had to remain conscious in order to retain the several litres of contrast dye that was going to be piped into my inflamed nether regions) – I fell completely apart. And I do mean completely.

Weeks of pain and sleep deprivation and bleeding from the bowels had thoroughly shredded my ordinary pluckiness. Unlike other CT scans I’d had (those were on my head and neck, and required that the dye be injected only into my veins), this procedure was going to be excruciating.

More pain was not what I needed, and on top of that, it was clear that if I wasn’t able to bear the ratcheting-up of that pain for long enough to get good film, the whole nightmare would need to be repeated before I could have surgery. So added to the anxiety I was already feeling about the upcoming surgery (for which I could at least expect to be anesthetized), the anxiety about this painful procedure totally overwhelmed me.

I sobbed, I pleaded for there to be another way to get this information, I hyperventilated, I begged for more time to prepare myself, I clung to the gurney railing and to the hand of the dear friend who’d accompanied me to the imaging suite. Fortunately, that friend is an Earth Mother type who knows just how to comfort and support a terrified child – for that’s certainly what I turned into. The technician was also extremely compassionate, patiently answering my plaintive questions and never once pooh-poohing my fear.

It took a solid 10 or 15 minutes for me to recover enough self-control to proceed.

I got through it, but only by the skin of my teeth. And even though I didn’t have to get up and go home afterward – I just got wheeled out into the hallway to await the orderly who’d fetch me back up to my hospital room on the gurney – I was still deeply grateful that my friend was there to keep me company as I shivered in the aftermath of the whole hideous experience. Never for a nanosecond did she indicate that she thought there was anything shameful or silly about the way I’d behaved.

Do I wish I’d been able to be more stoic? Sure. My meltdown certainly didn’t make the test any easier. But I had the feelings I had. And I didn’t have the emotional or physical wherewithal to keep a stiff upper lip in my shock and dismay. (I’d had no warning about what this test would entail. Had I known, I could have done at least some of that weeping and wailing beforehand, and maybe used some other anti-anxiety techniques that have helped me in the past.)

As for Jamie’s appointment this past Monday, when he expected to hear the results of this round of testing, I completely understand his wanting someone to accompany him on such a visit.

Several years back, when I went for a pre-op consultation with the surgeon who was going to do my hysterectomy, I was flanked (and not just in the waiting room, but inside the examining room itself) by not one, but two friends. I’d have been fine with only one, but by a fluke, two were available and wanted to come along in case the surgeon had bad news for me about the tests I’d just had. (There was a growth on one of my ovaries roughly the size of a softball, and we didn’t yet know whether it was benign.)

Similarly, when another friend went to hear the results of a test that would tell her whether she has the gene for Huntington’s Disease – currently a guarantee that she’d die a slow, grisly death from that ghastly neurogenerative disease (which had killed her grandfather, uncle, mother, brother, and cousin), I was one of two people who went with her.

People who are told deeply scary stuff in doctor’s offices are at considerable risk of “tuning out” much of the rest of the conversation, as the information echos around inside their head and they begin their struggle to process it.

In fact, when I escort a friend to an appointment like that, I bring a tape recorder in case I, too, am so shocked and distressed that I miss something important.

Uncle Enore is sending brain healing rays to the NakedDumbass

Ok.

Jamie A.K.A. Poetry Boy misses everyone very much

Thanks, Jessy

I wasn’t expecting it to frighten me nearly as much as it did. I suspected it would make me nervous because I had an experience about 6 months ago where I got stuck in a crowded elevator that jumped up and down before dropping about a floor and a half. However, the closeness of the machine completely terrified me, even with my eyes closed.

They got me calmed back down before asking me if I wanted to try again.

For sedation to be an option for me, I need someone to take me to the test and back home, which does not seem to be an option.

Hey Jamie, I think I found a solution for you...

Someone who will act like a friend and accompany you.

You know, failing that, you could consider Burning Man MRI. Those guys will custom make an MRI for anyone, just state your preferences.

hey Unc, if you’re reading this, they finished your MRI machine ...you have an appointment next year

Jamie A.K.A. Poetry Boy misses everyone very much

LMAO!!

Now that is a pair of excellent suggestions.

I think the ideal is to have the guys at Burning Man to make me an MRI machine that will fit me and my new “friend”.

Uncle Enore is sending brain healing rays to the NakedDumbass

You'll understand, Hawk...

...if I don’t say shit.

It pretty much

left me speechless, too, Unc.

Uncle Enore is sending brain healing rays to the NakedDumbass

Yeah.

Well, speechless, or at least silent, on that subject is what I am going to remain from now on. Some times it takes me a while to get shit thru my head.


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