The results are in: the MRI was fine (though they did find a benign cyst) but the EEG is abnormal. They want to do bloodwork and some other tests.

The doctor also thinks it is possible that she’s not having seizures per se – she might be experiencing infantile spasms. That has its own set of possible problems. I’ve got to look into this more, but it seems that (a) a fair number of children that go through this develop other types of seizures later, and (b) it is also associated with mental retardation.

Anyway, we’ve got to have the tests done, but there are several options to consider, one of which is a hormone treatment that would almost certainly stop the seizures and restore her EEG to normal. The cost? $23,000…per month. Yeah. The doctor said he’d obviously have to clear that with the insurance company – I’m not holding my breath.

I’ll update as I learn more – and when I’m less tired. It was a long day at work today.