A Girl in the Curl is back in school

NOT HAVE CANCER (read all 15 entries…)
Every appointment... 14 months ago

Every appointment gives me a new set of questions to come away with, a new decision to be made. Each time I make a decision, I head back to another appointment and I’m presented with a new set of crap to deal with.

I met with the radiation oncologist yesterday.
Because I opted for a lumpectomy, I have to have radiation.
I didn’t opt for the mastectomy, because there was no guarantee that my lymph nodes would be negative, and if I woke up from surgery with that bad news, I’d have to have radiation anyway.

Smart, I thought.

But, I was supposed to have met with a geneticist to see if I have the BRCA1/BRCA2 gene. When she called and left me a message, I had just heard from the surgeon that she had to postpone my surgery because there was “something” on the other breast MRI and also on my liver, needless to say, my intrest in genetic testing went out the window and my life flashed before my eyes.

Well, the tiny lump in the other breast is NOT cancer (per the biopsy they did) and what’s on my liver is the topic of debate. The surgeon said it was not cancer, because it would have taken up the glucose and radioactive isotope in the PET/CT scan they did…the Medical oncologist said it’s just 5mm, which is too small to really take up glucose if it were cancer…so she can’t conclusively say it’s not cancer.

Chemo: I will start it just after the elections. I had to battle this should I/Shouldn’t I for quite a while.

There are many, many negatives to the chemo.
But, the long term rate of metastasis or reoccurance is much much lower the more I do.

So, as I make one decision, up comes another. Mastectomy.
If I test positive for the BRCA gene, it means I’m likely to have another breast cancer…so I have to come to terms with this mastectomy thing, when, how, what…etc.

Reconstruction thoughts,ugh. Silicone? no thanks…that crap needs to be replaced every 10 to 15 years and when they degrade, there’s evidence of auto-immune diseases from them (lupus, and arthritis to be exact) Saline implants…not sure about them…I hear they burst.

Implants in general—something plastic and foreign in the body…ew.

The thought of the autologous implant is horrific. They cut bits from here and there, your abdomen and tunnel it under your skin to the breast area so it has connection to the abdominal blood supply. Taking muscle and fat, and I don’t even want to tell you how they reconstruct a nipple and where they want to take THAT skin from, let me just say, it makes you cross your legs and brings a tear to your eyes.

So, the alternative is to walk around as flat chested as a 14 year old boy. This isn’t so bad, I guess. My husband is really against the thought of either the implants or the reconstruction for how horrible it seems and how long it would take to recover from it. He’s assured me he doesn’t care about the overall “look” if I decide to stay without implants.

Here’s the moment of truth: What’s the right choice for me? I never thought I was vain, or interested…I never really much thought about my breasts, but now, the thought of swimming and surfing without a set of boobs in my way, as I’m used to…really sort of sucks.

I wish I knew why I was having such a hard time with this.

It feels as if I’m buying survival by cutting off pieces of myself and sacrificing them…here, boobs, hair, ovaries…what else can I throw out? Like ballast for survival.

Fuck Cancer.

ps, posting pictures of my face has been hard, posting pictures of my nakedness is even harder…I don’t know why I’m doing it. What the hell should I be shy for, anymore? I’m sorry if this offends anyone.



Comments:

Cloudberry is a highly skilled migrant.

not at all...

beautiful, tasteful photo! (of a beautiful, tasteful woman, of course.) It was a great idea to get those done.

A Girl in the Curl is back in school

Thanks, Em

I am still waiting for the photographer to get the prints to me. The two hour shoot turned into 1 hour 15 min. and I got about 45 pics from which to choose.

This one was one of the better ones, most of them just sucked.
I was pretty unhappy when I saw the proofs.

This one was my idea, I had seen a nice pic and liked it.

She had some whacky ideas for poses…ah well.

Thank you
(for everything)

mahinui ever more at home

love the photo

what sucky choices you have.

Do the genetic tests. You’ll feel much better about your choice then. Or so I predict.

This may sound weird, but when I think of all the chicks I know who’ve had implants just because they want a deeper cleavage and puffier boobs, what I think is, gotta love those saline pillows.

Seriously, the option is there. The bursting thing – it must be fairly rare. I’ve of course seen lots of boob jobs go through car wrecks and come out just as they were. So, maybe not as worrisome as you may think… or then again, you probably know more horror stories than I do.

Good luck with this… Good luck with finding the rosier outcome. It’s there for you. I know it is.

A Girl in the Curl is back in school

Thanks, Mahinui :)

Yeah, it’s not that the saline rupture scares me so much as it’s the plastic it’s encased in.

Still the only “wholesome” option is just to walk around with giant zipper scars where my boobs would have been.

My husband swears this is the better option, knowing me and how I loathe plastics. He offered the suggestion of falsies.

How does a bra stay on if you don’t have boobs to hold it down? I imagine it would ride up something fierce. ugh, the thought of “cutlets” makes me ill.

Yeah, there’s a possibility that the genetic test will come back NEGATIVE for the BRCA gene, and then, there’s no reason to think about mastectomy.

Still, I don’t have that kind of luck.

(This comment was deleted.)

mahinui ever more at home

no???

Are you sure?

Luck is something that is out there. You pluck it like fruit.

So time to get pickier about the luck you pluck and go for the plums, peaches, and pears.

A Girl in the Curl is back in school

I like this

Plucking it like a fruit idea!

Still, if I could do that with these genes, I’d have picked to have the leggy blonde/blue eyed genes, too!

mahinui ever more at home

oh no, why that?

You are so beautiful. Whyever would you want to look like Cindy McCain?

catattack loves the Fall!

Girl, I've been following your posts...

and your blog. I linked your blog to my own cancer blog.

I thank you for posting what must be a horrible, raw experience for you. Thank you for sharing your experience.

That said, it’s hard to read. Important to read, but hard.

And, also, thank you for that photo. It’s inspiring.

(This comment was deleted.)

A Girl in the Curl is back in school

Yeah, tattoos

I think the very thing that’s bugging me about the thought of mastectomy is that it’s SO permanent.

Like Tattoos.

Which I also don’t like the thought of.

Maybe it’s the architect in me…nothing should be completely unreversible.

(This comment was deleted.)

A Girl in the Curl is back in school

They do?

Good Golly.
I can’t imagine.

Not sure why

you’re having such a hard time with this? Dear Whatever, woman, it’s your life and your body! Having a hard time with it is a healthy response. Thinking about all the options, even if that’s overwhelming, is smart, smart, smart and you’ve always been smart, so this is no time to change.

The pic is exquisite. You are exquisite. I have absolute faith that you will come to a decision that is right for you.

A Girl in the Curl is back in school

Thanks, Tiissi

For the kind words and such faith in me. I guess I’m posting things here for my 43 friends to know what I’m going thru, so they don’t think I’ve dropped off the face of the earth, or I lost intrest in them.

Thanks for the positivity, sister.

You're one of the

good ones, dearheart. Smart, beautiful, funny, kind women are exactly what this world needs.

mahinui ever more at home

true words

A Girl in the Curl is back in school

Me?

Good gosh.
I don’t know.
I just lumber along, one foot in front of the other…I don’t know what else to do or how else to be.

Thank you for the kind words—I can’t see it though.

I think we need to start

a Beautiful Brave Brilliant But Blind-to-it Babes Club here at 43T. There are so many of us who can see the beauty and gifts of others so clearly and are absolutely blind to our own beauty and gifts. What does it take to get us B6 girls to jump the chasm between how we see others and how we see ourselves? Truly, I wish I knew what to do to get from knowing there’s a disconnect and bridging it.

jerebel trying to come up with $900 by thursday so we have a place to live.

Hang in there honey!

I’ve been where u are. I opted for the lumpectomy and as far as they know it was successful. I have another mass in the same area, but its not showing up on sonograms, so they believe it to be nothing of concern. BUT-i can relate to the issues you have talked about. I know it is hard. I agree -FUCK CANCER. But also, know that you are stronger than you think. You can and will survive this. You will “FUCK Up Caner.” I believe that. Hang in there girl. And don’t consider yourself vain. Every woman in your situation, will have the same thought. Its a normal question. We are., as women, so tied to our breasts as something of glory and beauty. Partly because men love them, and partly because we let them love them. lol but as it sounds vain, it is a reasonable and logical question. Hang in there. I’ll be praying for you. xoxo Jerebel

A Girl in the Curl is back in school

Thank you, Jerebel

Even though I grew up with breast cancer (my mom’s, diagnosed when I was 10 or 11 years old) I feel relieved to hear from other women who have been through this particular fire.

I keep thinking that time goes on, anyway, regardless of me or what I’m going thru. All that (MISERABLE) time in nursing school, and the ICU…I can sure survive the next few months.

One foot in front of the other.

thanks, Jerebel :)

catattack loves the Fall!

One foot in front of the other.

Good advice.

I had an “easy” time with cancer when I look back on it. Surgery, whoops! part of the colon is now gone. I opted not to have chemo.

Yours is a different form, you’re in an advanced stage. I can’t imagine what you’re going through (so thanks for the information on that).

I’m very aware that the other shoe could drop (in my life) at any moment.

A Girl in the Curl is back in school

shoes can drop in anyone's life

We are a funny sort, human-beings are.

We never seem to feel our own mortality until something happens, yet I find it an irony that we’re supposedly the only animal that can conceive of its own demise.

I think this brush has certainly brought my own mortality closer to the forefront of my mind, much moreso than my brother’s death when I was 18, and my mom’s 4 years ago.

I thought I knew all about cancer, having gone through it with my mom for 30 years, and my brother’s leukemia, but nothing in the world can get you ready for sitting in the driver’s seat and driving this crazy tea-cup of a ride.

I have to thank you again for the kind words, and the flattering linking of my blog to yours (which, I would love to read)
I started the tumblr log because it’s so not like my usual blog, on which I do share links and have other blogs linked…maybe I will link that blog to this one and if you’ll allow, to yours.

I’ve got a small collection (as I’m sure you must) of cancer blogs going, they offer a lot of good info.

I’m having a relatively easy time of the chemo so far, I think (compared to memories of what my mom went through in the days before anti-emetic drugs to help control the nausea)

I’m lucky that they caught it early enough (it was only stage 2, and very nearly stage 1 but for .1 cm difference in size) and it’s a very drug-sensitve form of cancer, so my hopes are that I’ll get a “normal” life-span out of this.

As will you—don’t underestimate the power of exercise 5 times a week, for 30 minutes at a time, and a high plant based diet (lots of steamed veggies, lots of whole grains, lots of fruit)

I pretty much lived this way anyway, but will be less “lazy” about my workouts/walking to the park with the pooch.

Thanks again, Catattack.

(This comment was deleted.)

Kalibebti has interview with Newspaper Editor :D

that is a gorgeous photo

How are things going this week?

ps I have a friend who is quite naturally almost ‘as flat-chested as a 14-year-old boy and she’s beautiful! I know it’s different but…might that help a tiny bit?

A Girl in the Curl is back in school

Thank you Babibi

:)
Yes, I’ve always envied and admired A cup women; clothes seems to be designed for them.

It’s different in that I’ve had breasts since about the age of 11 or 12, and have been a C or D cup for, what feels like, forever. I don’t know how it will feel to be suddenly left with two giant scars where breasts used to be.

I’m feeling great, since I don’t start chemo until November 10th. I didn’t want to start before elections, to make sure I can get to the polls and vote and not be too sick.

There’s too much at stake this time around.

I’m dealing with the insurance company (who doesn’t want to pay for a wig, or for the meds that will keep me from throwing up on the chemo, as this isn’t a need, I guess, like the hair) and that I now also have to pay $100 for each scan, like a deductible, and I’ve had about 10 MRIs, PET and CT scans…so, it’s adding up.

Add to that, that the county (for which I have the misfortune of working) is keeping my checks, and I can’t seem to figure out how they justify giving me one out of four that they have, and then when I return to work, that my pay will come out of these checks for the first two months, essentially making me work for the disability money I’ve already earned…)

Besides the headaches and hassles I’m dealing with, I feel just fine.

But this shouldn’t happen to a dog.

And…I have GOOD health insurance. That’s the amazing thing. I can’t imagine what people with little/bad/no insurance would be going through right now.

Selling it all off, I suppose to pay for treatment.


A Girl in the Curl has gotten 24 cheers on this entry.

 

I want to:
43 Things Login