MMiller0601 is exhausted by my new job...

Raise Epilepsy Awareness (read all 19 entries…)
I'm still not sure what is going on with my daughter... 13 months ago

The injections we’re giving her are a hormone/steroid thing.; we’ll give her the full dose for a certain period of time, then we’ll wean her off, with the idea that her body should take over production of the hormone.

Well, she has been on the medicine for about three weeks or so and she’s got an EEG scheduled for next week. I think that should be fascinating – she can suddenly walk better, squeal with joy, smile, hold a sippy cup…

Nov 01, 2008, 07:45PM PDT | 1 cheer


Comments:

angelam1

wow

i hope her eeg looks better, but it sounds like she is doing better. must be a tough little kid.

Nov 03, 2008, 06:31AM PST | Thread | Respond to this

MMiller0601 is exhausted by my new job...

Thanks...

the EEG was better, but still abnormal. They are going to leave her on the full dosage for another two weeks, then do another EEG and start weaning her off the medicine.

She’s a sweetie, and apparently a very determined little girl!

Nov 05, 2008, 05:52PM PST | Respond to this

RUNRGRL is trying to fix what has become broken needs to either let 43 things go or get back into it

Catching Up

As I caught up on your daughters story and your amazing courage and strength that you no doubt transfer to her I began to smile and feel real joy to “hear” of her great progress.

Courage is not the absence of fear, but rather the judgment that something else is more important than fear.
Ambrose Redmoon

Nov 17, 2008, 11:41PM PST | Thread | Respond to this 1 cheer

MMiller0601 is exhausted by my new job...

Thank you for that!

I feel, some days, like such a failure as a parent. Intellectually, I know that I really can’t take the blame for all of her issues – or those of her brother, but try telling that to your heart.

Anyway, I’m trying to shift my focus from me to her – I DO know that I can help and that helping her may very well help me.

She’s such a sweetie, so happy now. She squeals and giggles like babies SHOULD do. I swear, I will tickle her every night before bed to hear the giggles just because that is such a FANTASTIC sound to hear. I don’t care if I’m stirring her up a bit; joy is contagious.

Nov 20, 2008, 07:15PM PST | Respond to this 3 cheers


MMiller0601 has gotten 1 cheer on this entry.

 

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