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www.tokyomidtown-mc.jp/     English speaker available. at Tokyo midtown clinic

Come to grips with contracting HPV (read all 10 entries…)
Follow up Doctor Visit

I had a follow up appointment on Monday June 4th.

So the good news is that things are looking good. The treatment (both the freezing with the liquid nitrogen and the ointment I’m using 3 times a week) seem to be doing the job. The doctor used the liquid nitrogen on two more spots (Ouch!) while I was there in order to “err on the side of caution.”

The bad news is I left rather annoyed. I was trying to get some peace of mind by asking more questions about HPV in general, and didn’t really get satisfactory answers. Mainly, I asked if I could find out what strain of the virus I had.

My theory was, IF I end up ever having the “Hey I have a communicable incurable illness” talk with a woman in the future, and she HAD taken the HPV vaccine, I could tell her what strain I had, so she would know if it was one of the ones that the vaccine took care of.

Anyway, he was baffled by my request. He said, when they send the sample to the lab they’re just checking for confirmation that it is HPV, and that it’s not cancerous. He said they don’t usually “type it” for men. They do for women, because for them it is a much more serious problem and more prone to cancer. He kept saying that it doesn’t matter what strain I had, the treatments were the same, and that no matter what, ALL women SHOULD be taking the vaccine. I really don’t think he understands why I’m so upset by finding out I have genital warts. Although he didn’t use these exact words, he pretty much said, “it’s no big deal, everyone has it.”

He did add that if the warts come back after this treatment, he could send another sample to the lab then, and get it typed, but he was utterly baffled by my request, and warned me that my insurance likely wouldn’t cover it.

I’ve noticed similar statements from some 43Things members in response to my earlier posts. One of my friends also just shrugged, and said I was over-reacting.

Why is it that I seem to be the only one who cares that I am infected with a potentially incurable illness that I could pass to someone else? Why is everyone so cavalier about this? It’s easy for people to say, “Oh…Brian, you’re blowing this out of proportion. Practically everybody has it anyway, and there’s a vaccine, so stop worrying” when you don’t have it.

You know what? If you don’t have it, or something similar, than don’t bother giving me useless advice. Maybe I am blowing this out of proportion. But if you don’t have the same problem, then you have no place telling me that I am. Just let me blow off steam by writing down my thoughts, and quell that urge to offer advice. Thanks.

I’m sorry, but I view this as pretty damn serious. There isn’t a cure for this yet, and I don’t want to be responsible for passing it to someone else. Why is that so fucking hard for everyone to understand?

Okay…venting done. Back to Happy Brian now.

Next follow up is at the end of July.



Comments:

This isn't advice

so I don’t think I have to shut the fuck up but I’ll use my scared little whisper text to tell you I think more people need to be considerate like you. I think the fact that you do worry says what kind of a person you are: high quality.

and of course I would never mean to offend you in any way.
::scuttles away::

dharma_child in seach of Shea Butter...

WOW...breath Brian.

I gotta step up here and own my own sh$t. I made a comment about how I HAD perceived you reaction to the diagnosis, and if that has in an way contributed to this frustration you are experiencing, I apologize sincerely.

I have been quite impressed, actually by your openness, and willingness to go through this process step by step rather than seeking the comfort of denial.

After reading most of the responses to your posting, I got the general sense that folks were trying to help{insert air quotes} you gain perspective on your situation. But, for sure I can 100% understand from your end that it could be received as people minimizing your experience.

This is bloody really for you, and every emotion that you’ve been describing deserves to be acknowledged as valid rather then judged.

(is Happy Brian still around because ranting, cursing Brian scares me a wee bit…eeh!)

I'm not angry....

I appreciate that everyone here is just trying to help and offer support in their own way.

It’s just frustrating when you have a problem, and no one (including your own doctor) thinks it’s as big an issue as you think it is.

Besides, it’s kinda hard to swallow advice from someone who does not share the same problem.

No worries though. I’m fine.

Scary? Whatchyoutalkinbout? I’m not scary! :-P

(This comment was deleted.)

dharma_child in seach of Shea Butter...

Brahahaha! That's exactly what I was thinking....

...that picture is perfect. It was like I was walking along 43 Avenue, and I see a familiar squirrel (that I’ve named Brian), and I leaned over to say, “Hey, little squirrel”, only to have fuzzy Brian grrrr….tee hee. No, you’re not scary (cursey Brian is an itsy bit scary =)

I hear ya though about the frustration… that’s why I wanted to apologize for my own insensitivity. I believe you’re right in some ways about people commenting about things they have not experienced (kinda like non-parents giving parenting advice). I also think there is some value in a stranger taking you by the shoulders (figuratively), and adjusting your position, and suggesting that you look at something from a slightly different view. You may just tell them to F$%# off, and return to your original place. But, I think you still gain some new insight from that moment of seeing things from a different perspective.

cdebianchi is doing vector algebra homework

Glad

I’m really glad that you are being real about what is going on in your mind. To be honest, there are not a lot of people out there who really care about other people’s health. I’m glad you really are concerned and hope that you do take the precautions by educating whomever you are romantic with. I think being celibate is a good choice and whoever you can potentially marry later will learn this information and be glad that you were frank with them. Rest assure Brian, you are absolutely good. Good person, good heart. Stay encouraged.

(This comment was deleted.)

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