manage my fibromyalgia

was the mind, body, spirit connection and surrounding myself with people who energize me, not drain me.
Also doing things for me and not caring just for others around me. I still need to remind myself of that.

I need to eat right, and get enough sleep. There is just so much my brain wants to take in, it’s hard to shut off.

when I’m out of this house.
Interesting?

I still need to make sure I rest or I can still kick my own butt.

Fibromyalgia & Fatigue Centers I think I found the link here at 43T.
I’m fortunate that they have a center here in Los Angeles. I had my first appt and they took a ton of blood from two different veins.
They pretty much have the same philosophy about FM that I do. Many of my bloodwork readings are on the borderline other peoples “normal” but that may not be ok for my normal.

Many of the vitamins and supplements that they gave me are the same that McSmarty and I have found have been helpful over the past 13 years of trial and error with me being the guinea pig. One of the new ones they gave me McSmarty came home with that same night with because one of his co-workers had recommended.
Once I sit down and make a nice LONG list of everything I’m on I can share them with you. I’m up to three full boxes with Sun-Sat like your grandma uses for her meds. AM- Noon – Night plus some powered stuff I have to drink that is just putrid! :P

I was napping less until I got this dumb cold so that was a very good sign :)

that they still have Chronic Fatigue listed as this whole separate thing. The only big difference between CF & FM if with FM you have pain.But really all of the autoimmune symptoms overlap with each other so it is really hard to pinpoint what is what.
It kind blew me away just now when I read that you can compare the symptoms to: “The suffering that can be experienced by a patient with ME/CFIDS has been likened to an AIDS patient in the last two months of life and/or a terminal cancer patient.” Yes, It is easier just to a take nap then to push myself for one day, because I do feel week and lifeless for three days for that one day of fun and it sucks! :(

You have no idea how much I HATE taking naps! I want to go hard all day like I used to & not have it kick my butt!

I just went to an open house to see one of my creative memories friends who I have not spoken to in a while. Her Mom had FM also and she just passed away in March at the age of 60. I asked if she had Lupus and she said she did not. It is all so messed up! She also saw one of the Dr’s I saw for the Guifenisen therapy and did get some relief.I went for 2 years and did not. She also started having symptoms at the age of 30 just like I did. I guess the last time we spoke I was still at the point where they still thought that I was Chronic Fatigue because my pain still had not kicked in because I was still teaching classes. There are so many wonderful people I have stopped talking to since my health went down hill because I just hate hearing the simple question,”How are you doing?” Now I just say,”Hanging in there” When I really want to say,”I feel like $h!+. How are you doing?” :)
It really was good seeing her and I plan on keeping in touch. I also met some other nice women while I was at the open house today too I will be contacting more people I have not spoken to in a while.

that my Dr & McSmarty wanted me to try. I really don’t think it is helping and it gives me a bad stomach ache. I have an appt coming up so will so what happens. I’m sure he has some other new med for me to try but I’m so sick of being a guinea pig over the last 12 years. It gets so old after a while. Especially the ones that make you feel worse because of the side effects. I’m a very sensitive person so I can tell many times even after the first dose.
I gave this med the old college try. It’s been since July and the instructions say that it can take 8 weeks to get the full effect.

I found a place and I’m going to be staying there for one week with McSmarty’s blessing. ADD boy is at camp and DIY girl is at my Aunts. Bella is just going to have to watch the house and keep it safe from cats and burglers while I’m gone.

School starts in about three weeks.

McSmarts and I are going out to a Romantic Dinner down at the beach, watch our first Romantic DVD on the new big TV and enjoy the Romantic Peace Quiet tonight.

I’m taking off Tues AM so I don’t know if I will use my cell or Laptop. I may completely tune out. I just depends?

I need to heal my Mind Body and Spirit.

_{I should let my m-i-l borrow it}
I did not learn anything new. The one tip that they did give was to see an Occupational Therapist. They are the person who can help me sit down and “try to find something to do with my time” I have been trying to do all of this on my own for the last 12 years and be my own health advocate along with McSmarty. I need someone to sit down and help me balance my week. The book calls it Creating a Family Communication Plan. I’m tired of the yelling, cussing and begging to try to get some help around here.
I’m still trying to find a retreat, spa, hospital, wellness center, whatever, to go to, so I can rest and finish detoxing. I don’t know if the Ixel is helping or not. It can take 8 weeks before the full effect is felt :( My migraines have increased most likely due to stress but when I take my meds I get Very nauseous :P You would think that with all of the days that I only had chicken broth and 7-up I would have dropped some lbs, but no-oo

I did not realize that I was out of Paxil this week. I make up a vitamin box like old people do. Well, let’s just say, Detoxing off of Paxil really sucks( I did it once before but the Dr did it super slow over a months time and I felt like $h!+
Mc Smarty got me IXEL in the mail with a Rx from my Dr., but I had to go off of Paxil first…lets just say he is tickled that I’m trying this new med. One of our Big Huge Arguments is that if I don’t try EVERY single thing ANY of my Dr’s suggest he says,”You don’t want to get better!” I’m like, “No, I’m sick of being a guinea pig for the last 12 years!” I don’t like that it says to not take it if I use Topamax. If I drop dead you’ll know why :(

who also has FM. She drinks 2 oz. of Mangosteen juice in the AM & PM each day and says it helps. Well my super sweet cousin Lolita ( my mom couldn’t believe my aunt named her that after the movies came out) bought me a case of it back in Jan and I have not tried it yet.
I started using it this week, but I have been super nauseous lately and barfing (it started when we left for vaca, no I’m not prego) so I stopped using it.
I’ll have to try again when I’m feeling better.