Raise awareness and money for Crohn's disease and Colitis

My friend Judy died last week from complications of Crohn’s disease. I met Judy back in the Fall of 2001. I was at my worst and decided to join a support group sponsored by the Crohn’s and Colitis Foundation of America. judy was the support group leader.

Judy was a huge support to me and my husband. At our meetings, she even helped with our marriage, helped my husband to understand, be empathetic and have patience to handle what I was going through. In returned, I learned it wasn’t just me who had to handle this disease.

Judy never liked to talk about herself. She always listened to everyone elses story’s. Judy had multiple surgeries including a colostomy and reversal of it. She had been sick for years and never liked to ever showed she was feeling pain. But over the years, I guess we became closer and we would hear more and more about what she has gone through in her battle.

Judy lost her battle last Tuesday when she died in her sleep. I guess her body just gave up. She was 53 years young. She left behind a son 28, and her husband.

Thank you for listening.

I have to drink 64 oz. of Gatorade mixed with a non tasting substance called Miralax. I drank 32 oz. and threw up most of it. That’s not very good.

I have taken 2 laxatives which were probably no good too and came up with the Gatorade. This is awful so far.

Now I have to try to down the other 32oz of Gatorade mixed with Miralax. It’s hard enough I do not even like Gatorade.

Then I have to take 4 more laxatives and something called phosphosoda mixed with 3 glasses of a clear liquid. All of tis before 10:00PM tonight.

Arrrgh! No wonde rI have been putting this off for so long.

in remission for 5 years now. Today I have gone to the bathroom numerous times. Everything looks fine, but it still seems scary that something, after all this time could be wrong. It’s not fun having it weighing over my head.

Having Crohn’s Disease has certainly tested the patience of my husband many times. Let’s take our trip to New Orlean’s back in 2001. Mostly I was fine. But being in a strange city sure can put stress on. One time I made my husband get off the trolly because I “thought” I needed a bathroom. Another time we had breakfast at McDonald’s instead of a real restaurant because I was too nervous to walk the extra blocks that day. In addition, I made myself sit on the toilet so I a had flare up of my hemroids. It was awful.

My family and I are about to embark on our first family trip to Walt Disney World in Florida. My husband and I went back in 2002 together. Again, I was at the end of mild flare up and my hemroids were killing me the first days. SO much so I could not sit down at dinner time. I was afraid to go on the Safari adventure in Animal Kingdom the next day but I managed to survive it. Waiting on lines for the rides were awful. i was afraid of having to going to the bathroom once I got to the ride.

This trip, I am happy to say, I feel great! Everything seems to be in check and I can’t wait to get on that plain on Saturday. Wish me luck, bit I know I won’t need it.

I have stopped taking the drug 6mp since November. My doctor says I would not need blood work as often which is good. Mine came out fine by the way. However, I would still be due for that colonoscopy by June. Baby steps! Baby steps!

was canceled today. Rescheduled for next week. That’s ok b/c I am feeling good and it raining something awful outside.. It would have been such a Bitch to travel there today.

time schedule THAT colonoscopy AGAIN!

It’s going to have to wait until I get from vacation to Disney!

to add this cause to your face book page.

Thanks for joining!

The Spoon Theory I found under Tartsy’s goals. It has to do with someone who has Lupus which Tartsy also happens to have however, it can be put into relation with any chronic illness. It is very hard to explain to someone who has never sick what it is like to be sick.

So today I was impressed…. I received this email from MyPoints

Hurry! This Point Offer Expires December 10, 2007. Points for this offer can only be earned once. Get Your Points! Now that you’ve read the BonusMail, visit TreatCrohnsToday.com. Receive 5 Points. Once you get to TreatCrohnsToday.com, sign up. Receive 50 Points.

So I earned My points. But while doing that… I came across this guy, Ben. He says it like it is!