The bad news is we just spent a week in the hospital because Rachel came down with the flu. The good news is we managed to keep her diabetes controlled even while she was sick. I think this is the first time in 5 years that we made it through an illness without going into ketosis. Her blood sugar ran a little high but we raised her basal rate to cover it. Also, the doctor on call just happened to be her old endocrinologist so we were able to discuss her insulin ratios and make some changes that I feel were overdue. Since she got home last night we’ve had perfect numbers!
just me has written 7 entries about this goal
I decided to treat it like a perfect game in baseball and not jinx it by saying anything. Getting back on our school year schedule is great for her blood sugars. And her new teacher is fantastic! She wants to know everything about Rachel and diabetes. I’ve started doing a conference call thing in the mornings with Mrs. Betts, Nurse Kathy, and myself. We don’t talk every morning but often enough to stay in touch. It helps that we’re all friends and we’re all talkers. I feel so safe sending my daughter to school every day knowing she is with such competent people who care about her.
Yesterday, we went an entire day without a severe high or low. Her blood sugar stayed between 80 and 230 all day. 230 is actually a bit high but right now it’s pretty good for us. Her new basal rates seem to be working but I think the most important change is that I’m being much more careful. I’m giving her insulin before meals now instead of after. I have to make sure she eats the right amount of carbs this way, but it eliminates the risk of forgetting a bolus. Today I meet with her new teacher to go over the treatment plan for this school year. We’ll see how it goes.
I’m determined to get her BGs more balanced before school starts next week. Today we checked her sugar every few hours and changed her basal insulin. I’ll wait a few days and see how it works. Then I have to test her night insulin rates. Wednesday I meet with her new teacher and some of the school staff to go over her treatment plan for the school year. I hope it goes well. I’m always afraid of overwhelming the teacher. It really sounds like more work than it is. Especially now that Rachel can test her own blood sugar and usually knows when she’s getting too low. I hope everything goes smoothly this year. Last year was pretty rough. Her teacher never paid any attention to the treatment plan, just sent Rachel to the nurse for every little thing. She ended up missing a lot of class time. This year I picked her teacher ahead of time and I think she will be very good. Guess I’ll find out.
I just got the JDRF newsletter and there was some pretty bad news in it. Apparently recent studies show that dramatic changes in blood sugar levels are just as harmful as prolonged high blood sugar. So even when I manage to get her blood sugar in the target range, it’s causing damage getting it there. What am I supposed to do? No matter how hard I try to manage this disease, it’s still hurting her! I can’t let myself think about complications yet, but sometimes I feel like it’s a big black cloud hanging over me and I’m going insane pretending it’s not there. Maybe I should just read the end of the book already.
The last few weeks have been terrible! I have been so careful with changing her pump set and counting carbs. First she was high for a week. I think her insulin was old. We got new insulin and now she’s been severely low 6 times in 3 days. She keeps begging me to let her stay the night at a friend’s house, but until I get things stable I have to say no. It really bothers me that she misses out on certain things because of this disease. But she never complains. I think she is more accepting than I am. Maybe I’ll have her friends over here for a slumber party. Hmmm…
It’s an ongoing battle, every hour of every day. We haven’t had a break now in 4 and a half years, and possibly we never will. But that’s negative thinking. It’s entirely possible she will be cured before high school! We continue to test sugar, take insulin, and monitor every part of daily life. She’s pretty out of control right now, but we’re working so hard to get her back on track.
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