Just started new medication which,
2 years ago
in a few months, may help me feel less exhausted, pained, and may help slow the disease’s progression.
Other than that, I just have to pay attention to how I feel, rest, rest, rest, have compassion for myself, and clearly communicate to people my needs, abilities, and boundaries. I have only met one non-physician who’s heard of my condition, Sjogren’s Syndrome, so people don’t really get it. I’m wondering if that really matters, though, or if it’s more a matter of my own patience and care and compassion towards myself…
