I was online for a while with Gemmword earlier this evening.
She’s still battling jaundice (which is evidently getting worse) as her liver works to help her past last week’s ghastly allergic reaction.
She hasn’t been sleeping well since the incident: either her body wakes her up (needing fluids, for instance) or her poor dear mum panics and wakes her every 2 hours to ask what meds (i.e., herbal remedies) she needs.
We joked (a good sign) about how much that’s like being in the hospital: “Ma’am? MA’AM? Wake up! It’s time for your sleeping pill!” Not a joke when you’re the one trying to rest and heal, though. And of course she doesn’t want to hurt her mum’s feelings. (I suggested drugs. For her mum. “Have a nice cup of valerian root tea, mum. It’ll help calm your nerves.” Gemmword allowed as how the thought had crossed her mind.)
She hasn’t the energy right now to even read these messages, much less respond to them. I’ve passed along whatever she had the energy to listen to.
She did sign on before she and I talked and start to try to read the accumulated postings under this thread. Both Jamie and I had separately been telling her about them. Sadly, in her exhaustion – which, I know from personal experience, can skew one’s perspective pretty severely (no wonder sleep deprivation is such an effective torture technique!) – she interpreted (or rather, in Jamie’s opinion, with which I concur, misinterpreted) something that had been posted as a suggestion that this might be “all in her mind.” Both Jamie and I assured her over and over that we saw no evidence of such an opinion here. But she’s been badly burned in the past – and as recently as this afternoon, by the specialist dentist who treats her – by people who insist that she’s at best exaggerating and at worst out-and-out lying or malingering. So she’s understandably sensitive about the issue.
She asked me to “make clear that this is a real condition.” I promised to do my best, while pointing out that we can’t control what “people” think. We can only know and live and express our truth.
That said, she also acknowledged that she’s sure the person in question meant no harm, and in fact is a staunch supporter who cares deeply about her and has no reason to doubt her. And she promised not to do anything hasty (like delete her account) in her current condition. I’ve made a suggestion about how (when she’s feeling stronger) she might balance the inaccurate impression that some people might have formed about this condition, and she said she’ll take that under consideration. But of course her priority now must be to get as much rest as possible.
At the close of tonight’s conversation, that’s what she was planning (ok, hoping) to do. She promised to “try to catch up tomorrow,” and I admonished her to do only what she feels she can manage – while allowing for the fact that maintaining contact with at least one or two of us (Jamie had been online with her for quite a while before I popped up, and she said he’d been “a lifesaver”) does seem to be helpful, and perhaps even vital.
I strongly believe that she’s being helped by knowing how many people are rooting for her. And though she’s deeply weary and occasionally tempted to give up fighting, I also sense a strong heartfire in her: she wants to stay alive and come back to regale us with tales of the slugs’ adventures. So I implore you all to continue to hold her in your hearts and minds. And I promise to continue updating you all with whatever I learn.
Blessings on you and yours.