MMiller0601

I am participating in a walk in Norfolk, VA. I hope I can drum up some support!

I am grateful for a lovely and unexpected evening out – we even made reservations at one of our favorite restaurants!

I am grateful for two beautiful, healthy, happy children.

I am grateful for soft, clean sheets.

I am grateful for peace and quiet.

I am also great for the support and love of my friends.

And lots of things have changed. I am starting a new job (same company) on 9/14. That will be very good for me – I’ll get away from the people who curse me out on the phone! I’ll have more challenging work to do! I’ll have a boss that I won’t have to walk on eggshells around! Yay.

My second child is being evaluated for the school system and I expect that they will accept her – so in a matter of about a month and a half, I will have both of my children in school (preschool, but hey – they’ll both be riding the bus!) Sniffle…my babies are growing up.

Sophie continues to have occasional seizures but is doing well overall. She has achieved all of the goals set for physical therapy and so is ready to move on. She has been evaluated for speech therapy and that will start in a little over a week.

I’ve caught up with an old friend from high school and it turns out he and his wife also have a daughter who has had seizures – and she’s the same age as my son! Built-in understanding and a friend for my son – it is fantastic. All in all, things are looking up for us.

I am grateful for an excellent night’s sleep. Went to bed at 9, got up at 6:30. That should help!

I am grateful for my home, even if it is rented.

I am grateful for my friends.

I am grateful for frozen waffles, enabling me to feed those hungry children ALMOST as fast as they want me to.

I am grateful for the weekend.

She is now on Topamax in addition to her seizure medicine. I have to ask, what genius came up with the idea of giving a two-year-old three capsules a day (two in the morning and one in the evening)? Needless to say, she won’t swallow the capsules so we have to open them up and put the medicine on her food. She takes a dim view of this. Sigh.

The hope is that this will make the seizures stop for good. It was tough at first before she got up to the full dosage, because the seizures started up again, and VERY frequently too. But they seem to have settled down again, now that she’s at the full dosage. She does have seizures occasionally, but they don’t seem to faze her. And the frequency seems to be declining again.

This whole process has been such a roller coaster ride. But she’s so beautiful – and she’s learned a new thing this week: the “I’m SO happy to see Mama” dance! It is adorable – she hops up and down and dances and grins when she sees me! I love it!

I’m so grateful that the receptionist is back from vacation; now I can get off the phones, away from cranky callers, and back to my own job! Yay!

I’m grateful for loving friends who have wrapped me in their love and support and held me up when I needed it.

I’m grateful for my baby’s new “Happy to See Mama” dance at the end of the day! So cute!

I’m grateful for the beautiful, happy smiles of my children.

I’m grateful for good books to help me relax.

I’m grateful for friends who love me.

I’m grateful for peace and quiet.

I’m grateful for good books and time at night to read them.

I’m grateful for a chance to “catch up” on my sleep.

I’m grateful for a weekend away – and for my own place.

I’m grateful for finally getting a great night’s sleep last night – I went to bed at 9 pm and finally, finally was able to sleep through the night.

I’m grateful for the peace and quiet at work (lol).

I’m grateful for my children and their hugs and kisses.

I’m grateful for life.

I’m grateful for my health.

I’m so grateful for all of the support and encouragement we’ve been given by friends and family alike.

I’m so incredibly grateful for the improvements both children have made in just one year!

I’m grateful for my coworkers and for my job.

I’m grateful for a comfortable bed at the end of the day.

I’m grateful for clean lovely soft sheets.

Well, the neurologist said that her EEGs are improved to the point that she doesn’t need one every six weeks or so – in fact she doesn’t have one sceduled at all right now! Yay! The sleep portion is still not right, but … he thinks she’s made tremendous progress. The waking portion is almost completely normal! He did start her on a second medicine that he hopes will make the seizures stop altogether! THat is an unbelievable thought to me after all we’ve been through.

I swear I feel like I’ve been facing these problems for an eternity, but in reality, the seizures started at 9 months and she’s only barely 2. Amazing how long such a short period of time can feel.

Needless to say, we’re so extremely happy with the doctor’s report and his hopes for her.

(Lets just ignore the fact that I forgot this for a week!)

I’m grateful for tremendous progress in my daughter’s health – she’s doing so much better!

I’m so grateful for incredible progress with my son in pre-school! He’s doing great too!

I’m grateful for the nice people I work with – including my husband’s boss, who is really trying to make sure he’s happy in his job.

I’m grateful for a little peace and quiet before bed.

I’m grateful for my home.

I think in view of my daughter’s progress medically….I think WE kicked today’s ass…

Whoooo…hooo….!

:-)

But I truly appreciate the support I’ve been given here.

My daughter (she’ll be 2 on Thursday) saw the neurologist again today…no more bloodwork, no more EEGs for a while (she’s had both every 6 weeks for about a year +). Her waking EEG is almost normal (YAY!) although her sleeping EEG isn’t as good as he would like. He is prescribing another medicine which may make the seizures STOP.

I’m just speechless…

I cannot even begin to put into words what this means to me…

I am grateful for my health.

I am grateful to have a job.

I am grateful for 18 years with a good husband.

I am grateful for a good program to help both of my children.

I am grateful for a lovely bed and clean, soft sheets.

And I am grateful for any amount of sleep I can get…

You DO get it from your children! Aargh…a four-year-old and a two-year-old? What WAS I thinking?!?

^{(And yes, I do think they are perfectly lovely children most days…but they WILL drive me round the bend some days!)}

I am grateful for good health.

I am grateful for a renewed interest in life in general.

I am grateful for the peace and quiet and time to reflect as I exercise in the morning.

I am grateful for my two beautiful, active children.

I am grateful for my job.

She’s the daughter of an old friend of mine and his wife. We – the children and I – went to their house last night for the first time. It was great fun, despite my youngest having a meltdown. Alex came home chattering away about his “fwend” Amanda.

My husband wasn’t with us for several reasons; he had gone to one of HIS friends’ houses first of all. The second reason is unfortunate; you see, my friend is an old boyfriend – I mean really from long, LONG, LONG ago – like 9th grade! My husband has issues with the fact that he and I have a “history” – I have to say this is one of his sillier moments, but I’m not going to press the issue. If he’s not comfortable, he’s not comfortable. However, he missed a good time!

That I have friends that would miss me more than I thought they would. :-)

I started working on it (kind of, sort of) a while back…but lately, I’ve been eating better and getting some exercise. Apparently it is starting to pay off! Yay!

Now, if they would just stop bringing donuts into work! Sigh…

^{I’m working on willpower, but hey…}

I’m finding a new group of old friends. Friends from high school are starting to come back into my life, first on Facebook but also in real life! That’s a good thing too, thouugh I do need to get out with new friends as well!