Scarlit

Finally a definitive diagnoses after many years of strange symptoms, horrible fatigue,odd problems with swallowing,bizarre rashes and alot of joint and muscle pain as of late especially.

After some special blood testing which include looking for particular antibodies,an MRI and a muscle biopsy I have been diagnosed with a rare disease known as Dermatomyositis.
Its a connective tissue disease as well as an auto immune disease.Basically your immune system attacks your muscles,most especially the muscles in the trunk of your body,which affects the lungs,the heart,esophagus(the muscles that control swallowing) and of course the neck,shoulders and back.Very little is known about this disease which is why I really want to put the word out about it.

There is treatment and many have gone into complete remission, so believe me I am going to fight this thing and I know that I will beat it.And I will still accomplish all of the goals that I want to.I may have to scale back on some things and thats ok,hell I never planned to run a 12 mile marathon anyway lol.

So I am about to post some links and information about this disease and I would ask that you please read and pass it on.As I said it is a very rare disease and we need to learn all that we can about it.
Knowledge is power and I want to be armed to the teeth with it!:-)I utterly refuse to let this take away from ALL of the things that I want to do with my life!
Thank you:-)
This is a great support group on Facebook
http://www.facebook.com/amy.crabtree2?cropsuccess=#/group.php?gid=10112679261

http://www.mayoclinic.com/health/dermatomyositis/DS00335

http://myositis.org/template/page.cfm?id=2

Alright Ive got New York and Maine covered!Now I just need to get to Massachusettes and the surrounding areas.
I love the New England area.Each state seems to be different and has all of its little nuances to make it eccentric.Not to mention all of the haunted lighthouses and inns that dot the coast:-)
More to explore!

He wondered how she’d take it when he said goodbye.
Thought she might do some cryin’: lose some sleep at night.
But he had no idea, when he hit the road,
That without him in her life, she’d let herself go.

Let herself go on a singles cruise,
To Vegas once, then to Honolulu.
Let herself go to New York City:
A week at the Spa; came back knocked-out pretty.
When he said he didn’t love her no more,
She let herself go.

She poured her heart an’ soul into their three-bedroom ranch.
Spent her days raisin’ babies, ironin’ his pants.
Came home one day from the grocery store and found his note,
And without him there to stop her, she let herself go.

Let herself go on her first blind-date:
Had the time of her life with some friends at the lake.
Let herself go, buy a brand new car,
Drove down to the beach he always said was too far.
Sand sure felt good between her toes:

She let herself go on a singles cruise,
To Vegas once, then to Honolulu.
Let herself go to New York City:
A week at the Spa; came back knocked-out pretty.
When he said he didn’t love her no more,
She let herself go.

To Vegas once: Honolulu, New York City.
Came back knocked-out pretty.