0 people want to do this…

get off the steroids and be able to stay off of it

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Queen of Teas is wishing everyone a great day!!

I Can't Believe It  — 3 months ago

Worth doing!

I truly never thought this was possible. I am off it and will never be back on it again for any longer than one month at a time. Whooooo Hoooooo!!

Queen of Teas is wishing everyone a great day!!

Almost There  — 3 months ago

Worth doing!

I decided that as long as I am this far, I may as well cut back to 1/4mg a day and when that ends in 5 days I will be free of steroids.
Will I ever use them again? I may have to but knowing what I know now, I will only stay on them no longer than one month.

Queen of Teas is wishing everyone a great day!!

4 Weeks to Go  — 4 months ago

Worth doing!

I saw my Dr. yesterday and he said 4 more weeks and I can stop the steroid. I’m taking 2mg every other day now and will continue that for 4 weeks and then I can say I have completed this goal.
I feel great knowing I am that much closer. I was about to give up on it a year ago but look at me now :)
Whooo Hoooo

Queen of Teas is wishing everyone a great day!!

Argghhh  — 4 months ago

Worth doing!

I found a new Pulmonologist that isn’t an arsehole. I was using Spiriva but had an allergic reaction to it so I had to stop using it and when I saw the new Dr he suggested I increase the steroid again until he is able to get my records from my past Drs. Needless to say I said “NO WAY”. I have never been this far to getting off it and I am not going to start this process all over again.
I’m now taking 2.5mg a day. Wooo Hooo!! I am determined and it’s going to work come hell or highwater.

Queen of Teas is wishing everyone a great day!!

5mg.  — 6 months ago

Worth doing!

I am more determined than ever and am now down to 5mg a day. It’s looking like I’ll have to stay on 5mg for about a month and then I’ll go to 5mg every other day.
As long as I’m doing okay I’ll then drop it again. It’s looking good.

Queen of Teas is wishing everyone a great day!!

Determined  — 8 months ago

Worth doing!

I am now on 10mg a day and I am determined to get off this awful drug.
I am hoping that after 10 days of 10mg I can cut back to 7.5mg for 10 – 14 daysand then to 5mg where I’ll stay for about a month. They say the last 5mg is the hardest. Hopefully it will work for me.
It’s been too long.

Queen of Teas is wishing everyone a great day!!

Possibly  — 10 months ago

Worth doing!

I had a nice talk with my NEW Pulmonologist and he has given me new meds to try so with any luck I will get off the steroid after all. Theres a chance again now anyway.

Segsy is in Atlantic City for work and play.

I was on the steroid roller coaster  — 11 months ago

Worth doing!

for quite some time. I had almost every side effect in the book from that stuff. I will tell anyone that the power of positive thinking can heal. I made it work for myself thanks goodness. I have been off for over 4 years now.

Queen of Teas is wishing everyone a great day!!

Not Gonna Happen  — 1 year ago

Worth doing!

It will take a miracle for this to ever happen. Just when I get on a lower dose, I have to increase it again to where I was. Looks like a lose, win situation.
The new inhaler didn’t help any better either. It made me worse :(

I put this on the list of AIN’T gonna happen. I GIVE UP!!

Queen of Teas is wishing everyone a great day!!

Grrrrrrrr, Double Grrrrrrrr  — 1 year ago

Worth doing!

I had to increase the steroid again. I was having trouble breathing for 3 days straight and there was nothing I could do except to increase it to 10mg. every other day, taking 5mg. on the other days.
Maybe when I get my new inhaler this week, it will work so amazingly that I won’t need any steroid ever again.
Okay, I am now picking my head up off of the pillow. Hey, it’s okay to dream

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