it doesn’t seem like there has been much activity on here recently, but I’m still glad I came across this site. I have been chewing the inside of my cheek and bottom lip for sometime…probably since I was in high school, and I’m 33 now. Beginning around last February, it finally caught up to me and I started developing the symptoms of morsicatio buccarum et labiorum. It effected the appearance of my bottom lip and only got worse when I used my mouth in any way (you know, eating, talking – the normal stuff).
I started seeing several doctors about it beginning with my primary care physician, who referred me to an ear, nose and throat specialist, who referred me to an allergist, who referred me to a dermatologist, who referred me to an oral surgeon, which eventually led me back to my primary care physician, who has since referred me to yet another oral surgeon.
All the doctors up to the dermatologist thought it was Lichen planus, but it wasn’t until after a biopsy was performed this past December that it was diagnosed as morsicatio buccarum et labiorum. As you can imagine, I had been prescribed a ton of medication – topical creams, ointments, pills, you name it – to heal my cheeks and, more importantly to me, my bottom lip. The most recent prescription has proved to be the most effective so far, prednisone. It has done the most to keep my lip together, so to speak, and get it on track to looking healthier and more normal. I’m finishing up my 2nd cycle on it, and the results are promising. There still seems to be a measure of deterioration of my lip after I eat, but it’s less and less severe with each day.
It has been a LOOONG and, many times, dark 17 months, but I’ve definitely gotten through the worst of it, and am actually dating again (sweet). I just wanted to post on here because reading nearly every 200+ posts has certainly helped me not to feel completely alone, hopeless and helpless (one doctor told me “I’m not smart enough to treat this”). Actually, after reading stories from so many other people with the same problem as I have been dealing with, I have a new-found hope that I WILL be able to get through this and see my mouth once again healed, and actually feel completely normal.
Thank you to everyone who shared their story. You have really helped me. I needed to find this place. :) 10 months ago