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find out what is wrong with me (by whatever means necessary) and learn to live with it or conquer it!


 

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tippytoes is a self-knowing, self-improving tree hugger

Untitled 19 months ago

It’s not so much about conquering FM as it’s about attitude. Stay positive, don’t let anything get you down, and you can beat anything. When I wake up and my body says I don’t think you can have a good day today… I say, Watch me!!
Never say you can’t.



tippytoes is a self-knowing, self-improving tree hugger

I'm losing interest. 2 years ago

Not that I don’t want to know what’s happening to my body, but I’m tired of speculations and no concrete answers. I’ve done a LOT of research on my own, which has pretty much yielded the same answer: “I don’t know, but it could be a, b, c, d, e, f or g.”
I just want to go away somewhere by myself and live on a nice beach, in a hut by the ocean, and not think about anything else.



tippytoes is a self-knowing, self-improving tree hugger

A frustrating health game 2 years ago

Steadily, over the past couple of months, I’ve been feeling like shit, to put it bluntly. At first it was almost imperceptible, the little changes, the random aches and pains. Carpal tunnel? Poor sleep? My almost-daily headaches are back, and so are the migraines.. but maybe it’s a coincidence. I have spots on my legs, cluster of pinprick red dots. I thought they were a rash, but they are spreading. Vasculitis? A steroid cream seems to get rid of them, only to have more and more appear. It’s a never-ending cycle.
I am sick of being tired, and of everything hurting all the time. My legs throb, all my bones, even in my arms, my back and my hips. Sometimes I have the grip of a 10-year-old, I’m convinced. I drop things. My right arm goes weak. My muscles spasm and throb, and my legs feel weak sometimes.
All this, and I am sick of not getting any concrete answers from doctors. Even the specialist I saw last week, with over 25 years of experience behind him, was stumped. Apparently the stumping factor is my lack of hair loss, mouth ulcers, dry eyes and mouth, swelling and constipation. As a result, I’m being sent for MORE and more blood tests, and x-rays, to check for everything under the sun. Lupus, RA, MS, tumours in my hip and sacroilical joint, and a bunch of autoimmune conditions.
In the meantime, I talked to a naturopath and started taking some herbal supplements for joint inflammation and pain. It’s not helping yet, but it’s only been a week.
Perhaps the most frustrating thing of all? The ever-present: “But you don’t LOOK sick…” as though, by that simple statement, I should be cured instantly! (Enough playing around, you look fine, so clearly you must be. I don’t see a reason for you to be this way.) Oh, if it were that easy.




 

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