learn to cope with epilepsy

1: take my medications regularly and without skipping doses!
2: work out to help improve my overall health
3: see a counselor (at school?)
4: go back to Johns Hopkins and have my neuropsych evaluation redone

As each day passes, I know I am learnin more and more on how to cope with epilepsy. There’s a very good friend and colleague of mine that I work with who has been exceptionally helpful with this and I realised just few days ago that I am dealing with this and its once again her who has shown me this. She was busy talking about her nephew who has also got epilepsy and I could openly talk about the meds I’m on and how its helped as she said her nephew is on the same tablet. I never felt embarrased,ashamed or scared to talk about it openly with her… And this is how I KNOW that I’m learning to do this better and better everyday… Understanding and acceptance… Its what we all need after which half the battle is won…

So it’s been 11 months since I got diagnosed with epilepsy. And I say diagnosed and not “have” epilepsy coz I am not sure for how long I actually had this before I had my first seizure.

I found the news really hard 2deal with and sometimes still think about why this has happened to me.

Here’s the shocking news… I am now dealing with this. I take it as it comes and am happy to say that I last suffered a seizure 6 months ago.

There was and still is alot of self motivation that needs to take place before anyone can learn to accept this and deal with, this is what I think at least. There is no easy way 2 deal with this but I believe that you got to first see that this was not dealt to you to make you suffer. It is merely another medical condition that certain human beings can have. The general mistake that society makes is putting an image of a “fit” next to the word epilepsy when they hear it! Immediately they freak out but let me say this… It is either coz they are scared or they are just self-centred.

Should you be one of the people trying to learn to cope with epilepsy, let me say this…. You can live with it. Its not a death sentence and neither is it a life threat. We all go through different things concerning epilepsy and the only way I learnt to deal with it is to talk about it. Preferably to those who live with it or a professional. Giving support or advise to someone is one thing however if it is coming from a person wh’s been through or going through it, the meaning is much different.

And I am here for those of you who need to talk or need anything else. I don’t know the exact amount of time it took me to adapt and accpet this, but maybe this is because I was trying so hard that life was running away from me. Don’t put a time span on it or else it will never happen.You will never just accept it. Rather accept that you are human and everything happens for a reason.

I am still paying medical bills from 7 months ago but I’d do anything to protect my health and myself from a seizure / fit.

We ARE HUMAN!

So it’s been 7 months since I’ve been diagnosed with epilepsy. At 1st I didn’t know what hit me but later starting reading more on this and accessing whats going on with me.

BUT right up until today, I still haven’t found a way to cope with epilepsy.

How do I go about this and where do I start? Help, please?

since we totally took away one of his medications. I have started to see my son again.

And I’ve decided I want to aim even higher now than just coping with the epilepsy. Now I’m going to aim for helping him heal his body. I know… it’s like asking for a miracle, but that’s how high I want to aim now.

My youngest son has epilepsy and takes 3 different medicines daily.