Well last week was another apt. at childrens hosp. On a good note his heart hasn’t changed. Thats good because it didn’t get worse. I was told no again for the trial drug because his valve is too big – and his valve is too small for surgery. Talk about frustrating !!!
They have taken everything away from my son – as far as what he can do. I understand why, but it doesn’t make it any easier on him. The one thing he had left was his martial arts class. Well they pulled that also. He can go no further. I am thinking GREAT just signed a 2 yr contract and bought his sparing gear.
Then he looks at me from across the room…eyes filled with tears and my heart just breaks for him.
He starts to talk to the dr. but you said I could do it. you said it would be ok. Talk about a tear jerker!
But the Dr told him no. because the further you get into this sport the harder it is going to be to stop.
OK you couldn’t have told us that to begin with?
So frustrated and hate that my baby is hurting. 4 years ago