“Febmoms” are a networked group of mommies (over 10 years) on a mission to get the word out about Kaleb, a child badly afflicted the dominant form of osteopetrosis and osteonecrosis. His mom, Lori, has moved heaven and earth to spread the word about this terrible condition and uncover the road to recovery. We are conviced that someone possesses the critical, passionate spark to save Kaleb from lifelong immobility. http://www.helpkaleb.com/
Who is Kaleb?
Kaleb is a bright 9 year old who suffers from the extremely rare combination of both osteopetrosis and osteonecrosis. This site is dedicated to spreading the word about his condition and finding that one gifted doctor who can save him from a life in a wheelchair.
What can YOU Do?
Ask your friends, family, colleagues, peers, etc. if they know anything about bone disease. If they don’t, do their friends know about it? If so, have they heard about osteopetrosis and osteonecrosis? Point them to www.helpkaleb.com and ask them to contact Lori to help.
What about the media? Do you personally know a DJ, a talk show host, a commentator on your local happenings? If so, can you drop them a line and ask them to interview Lori? Remember, Kaleb is not the only child suffering from this painful disease – getting the word out to the right doctor could not only get his/her name in the medical journals, but also help the thousands of other people currently suffering.
Do you know of any writers or journalists who specialize in human-interest stories? This story is begging to be written – a group of women who have networked for over 10 years are now pulling together to help one of their own. Not for profit, not for glory…simply to help a child achieve the healing we have yet to find. This is one of the ways the Internet was meant to be used!
