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Recent activity

wren 21 months ago


HippieChick2This morning I made a donation of $43.00 in support of

Tartsy who is walking for LUPUS. Anyone care to match my donation . . . or even better it? If you dare . . . you can do it here

O.K. so any donation amount would be great, Tartsy is still a little away from her goal of raising $500.00 and could really use our help 9 months ago


TartsyWeekend Plug

Please consider even a small donation to sponsor me on the Lupus Walk!

http://lupuswalkohio.kintera.org/faf/donorReg/donorPledge.asp?ievent=1009952&lis=1&kntae1009952=B0580F22B8F34A7C8A2DE70B44792F7E&supId=364011261

Thank you in advance for you consideration! :) 9 months ago


TartsyHelp a sister out!

Our team is in 4th place overall for donations and I would love to give # 3 a run for her money! Please consider helping out with even a small donation by sponsoring me on the Lupus Walk. The Walk is Sept 29th so there’s still time to make my dream come true!!

Follow the link:
http://lupuswalkohio.kintera.org/faf/donorReg/donorPledge.asp?ievent=1009952&lis=1&kntae1009952=B0580F22B8F34A7C8A2DE70B44792F7E&supId=364011261 9 months ago


TartsyPlease consider even a small donation to aid me in raising funds by sponsoring me on the Lupus Walk!

http://lupuswalkohio.kintera.org/faf/donorReg/donorPledge.asp?ievent=1009952&lis=0&kntae1009952=B0580F22B8F34A7C8A2DE70B44792F7E 9 months ago


TartsyIt's that time once again...

I’m going to start raising funds for the Lupus Foundation’s Lupus Walk!

Any and all support is appreciated!

Peace~ 9 months ago


TG 21 months ago


HippieChick2 21 months ago


Tartsy 21 months ago


TartsyWalk for Lupus Sept. 10, 2011

Here’s our team who just happen to be my family whom I love oodles.

Wonderful day, I raised $578 and the team as a whole raised $918!!

Thanks again & now I’m off to take a well deserved nap… 20 months ago


TartsyTomorrow's the big day!!

I want to say thank you for everyone’s support & officially let ya’ll know I broke my donation goal!! Without your help I never would have done it and I promise to walk tall tomorrow & represent!!! =) 20 months ago


HippieChick2WOOOO HOOOOO!!!!!

Tartsy met her goal!!! 20 months ago


TGYay!

It looks like Tartsy met her goal! :)

If anyone else would like to contribute, you still have time- there are 4 more days until the walk!

You can contribute HERE, and let’s all cheer her on this weekend :) 20 months ago


HippieChick2Tartsy is closer than ever!!!

She is only $15.00 away from her goal. The walk is this Saturday (09/10/11) Is there anyone out there that wants to support Tartsy in reaching her goal for the walk?

If you would like to help, you can pledge HERE

Thanks!!! 20 months ago


Tartsy$35.00 away from my goal...

Please consider even a small donation to aid me in raising funds for the Lupus Foundation by sponsoring me on the Walk! We’ll be walking next Sat. so this is my last big push ~ please help me out! =) My donation site can be found HERE.

Thank you to one & all for helping me reach my goal! 21 months ago


HippieChick2Tartsy is SO close to her goal!!!

Just $55.00 away. If 11 people pledge $5.00 she would be there!

Can anyone help Tartsy? HERE21 months ago


TartsyHi, I'm Tartsy

I figure I should take a moment to tell a little about myself, my story and why I’m asking for your support on my Lupus Walk.

First, the facts. Lupus is a chronic, potentially life threatening autoimmune disease that can cause damage to virtually any organ in the body, especially the skin, joints, blood, and kidneys.

I’m a 37 year old female who has had Lupus for 21 of those years. My support of this cause started even earlier then that time because my Mother, Sandy, discovered she had Lupus when I was born. Until that time she was blissfully ignorant of the disease lurking in her body. I was an only child (or so I thought) and I grew up quickly because my childhood was filled with the trappings of the disease. Mom was sick, a lot. In the late 70’s and early 80’s (to champion my Mom’s cause) my Father became the President of the local chapter of Lupus Foundation. That entailed much travel to host local meetings, attend conferences and lobby congress. My Mom passed away in 1983 after fighting hard for nine years. It was eventually kidney failure that got her (caused by Lupus) but there were many more ailments that plagued her at the end.

Fast forward to me at 16, I was sitting on a porch talking with my friend (who’s now a priest that I still adore) and my nose started bleeding out of no where. We aren’t talking a trickle here… Prior to this I had issues with anemia, pneumonia and a few other kid illnesses (chicken pox, mono, etc). At that time I had been getting HUGE softball sized bruises from injuries I couldn’t remember, little red spots on my extremities (petechiae) and I was constantly tired. The next day I was hustled to the doctor to be told my platelets, which help your blood clot, were at 3,000. Here’s some perspective – in an adult, a normal count is about 150,000 to 450,000 platelets per microliter of blood.

Needless to say, everyone started freaking out around me because I could potentially bleed out at any moment. Bless their hearts, they didn’t hospitalize me (thank you Dr. Dravid) but they did begin pumping me so full of steroids I couldn’t see straight. This gave me a whole new appreciation for Mom because she suffered on steroids for ages. In the end, they called it ITP – idiopathic thrombocytopenic purpura which occurs when certain immune system cells produce antibodies against platelets. At that time, my ANA (anti-nuclear antibody) levels weren’t high enough to officially consider it Lupus but this is a symptom. This was just the beginning of my journey.

I was officially diagnosed with Lupus in my early 20’s and have had some serious flare ups over the years. Thankfully, I haven’t had to spend any time in the hospital. I have ITP (my platelet count usually hovers around 30,000 these days), rheumatoid arthritis, sun sensitivity, fatigue, etc… Yet as an adult, I have been very lucky all things considered. I remain un-medicated (partially by choice), my pain levels aren’t too bad most days but I don’t live an aggressive life either.

I like the The Spoon Theory by Christine Miserandino to explain the way Lupus makes me feel on a daily basis. Some days are better then others but I am constantly reminded of my limitations. This Walk allows me to do something for my cause without being too taxing. It’s a 5K and I have a team of family & friends who will join me on the big day which is wonderful! So that’s my story and why I support the Lupus Walk.

This disease has surrounded me for a lifetime and if I should be alive to see a cure or even better treatments I will jump for joy! You can help me reach my goal by making a donation online. Click on the link below and you will be taken to my personal donation page where you can make a secure online credit card donation. I set $500.00 as an “impossible goal” figuring there was no way I’d reach this amount yet I’m currently up to $420.00! The funds are going to The Lupus Foundation of America, Greater Cleveland Chapter. These funds will assist the chapter in achieving it’s mission to be the nation’s leading non profit voluntary health organization dedicated to finding the cause and cure for lupus. They also provide support and services to all people affected by lupus. These are also the same folks my Father led way back when… =)

Thank you for your support.

Donation Site:
http://walkforlupusnow.kintera.org/faf/donorReg/donorPledge.asp?ievent=460624&lis=0&kntae460624=B1EF1F1E6AEF41FA9761A2CBBFF439D8&supId=332960708 21 months ago


HippieChick2Made my donation to support Tartsy this morning

I have a friend who lives in Tucson who also has Lupus. L is an amazing woman just like Tartsy. Tartsy and L both have Lupus, but Lupus doesn’t have Tartsy and L.

Tartsy will be walking on September 10 to raise funds for Lupus She has a modest goal of only $500. Let’s all rally together and help her to exceed her goal. Wouldn’t that be wonderful?

We can pledge for Tartsy HERE Tartsy is only $100 away from meeting her goal right now.

Join this goal and help spread the word! 21 months ago


TGMade my donation :)

I’ve read of Tartsy’s struggles with this disease for as long as I’ve been on 43T, and it’s great to be able to do my little part in supporting the research aimed at ending lupus.

You can read Tartsy’s entry about the walk here, and there’s a link in that entry where you can donate.

Please consider supporting her in whatever way you can. Good luck on the 10th, Tartsy! :)21 months ago


TartsyI love you Wren!!

You’re the bomb for creating this goal!!

I appreciate all the help I can get ~ thank you for helping a sister!

In the real world I don’t talk too often of my health. It simply isn’t something that’s considered polite conversation (no one wants to hear how tired I am or which thing hurts today) so 43T has been a place I can dump all that troubles me guilt free. I appreciate the freedom it provides me and the opportunity to just lay it all on the line!

Thank you for thinking of me and thank you for always supporting me!

For anyone who’s interested the donation link is here.

We’re walking September 10th and it’s a 5K. :) 21 months ago


wrenGo, Tartsy!

Tartsy is an awesome and inspirational member of 43T who is participating in a walk to raise money to help those with Lupus on September 10.

I encourage everyone to support Tartsy with cheers, messages and donations, which are easy to make when you follow this link.

Join this goal and help spread the word! 21 months ago


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