beat my chronic fatigue

Ok, so there’s no cure, hell the docs can’t even agree on what causes it. Nevertheless I intend to beat this! I haven’t been dealing with being ill at all well the last year or so and I gave up all hope to ever being healthy again so as not to be disappointed and in the process gave up many of my dreams and ambitions, but that tactic only lead me down a dark and twisty road of misery, so back to the drawing board I go.

So the plan:

1. Sort out my disability allowance.
2. Get into a healthy routine, eat better, exercise plan.
3. Look into the lightening process.
4. Go back to acupuncture and herbal supplements, only thing that’s helped before.

I think most(if not all) of the CFS sufferers would say something similar like : “I’m tired of being tired.”

I want to add this one here : “I’m tired of pretending to be normal and tired of always failing to even just look OK” and I’m not willing to pay the price for it anymore. It’s far from cost efficient.

At least now, I can’t afford a job even if I get one. So I think I’d better do something worthwhile and/or fulfilling beside preparing exams.

I told my Mom I wanted to learn sewing and try to sell my hand-made stuff. She thought it was doable, and bought me a sewing machine. She is really a good Mom.

Now I have to learn to sew using the sewing machine first.

I think I have to forgive those doctors.

I made them look incompetent, unable to help. Doctors feel bad when they are unable to help their patients. They even don’t really know what was wrong with me. That made their hurt feeling deeper. And they seemed horrified, as if they were being busted that they were plumbers pretending to be doctors. Strange looks on their face.

For defending themselves, they said “You’re young, there shouldn’t be anything wrong with you. Just take more rest.”

I asked a doctor was CFS possible to be the cause of my crazy fatigue and headache? He raised his voice and said proudly “We can’t diagnose CFS in this country.” I couldn’t believe he was so proud of this fact. Anyways, his point was that CFS is not exist, only mental illness is the cause for unexplained symptoms. Very clever. There’s no unsolved problems, only mental problems. Case closed.

Well…I still have to forgive those doctors. I don’t have time to hate people. After finishing this entry, I’ll stop being angry at those docs and do something else.

Oh…and I have to be cute when I’m angry. ROAR ROAR ROAR. w(o M o)w

Stress is my big enemy.

Mental and Physical stress waste too much energy, and make me crash very soon. I used to stress myself to tough out my tasks, small or large, but that made me miserable and sick afterward.

I have to TRAIN MYSELF TO RELAX every time I need to ‘energy up’, instead of pushing myself. I have to relax when I need to concentrate on something, confront difficulties, go shopping, do houseworks…etc.

I think for me it’s not hard to relax. I just have to remember it and make this a knee-jerk reaction.

No matter what I’m dealing with, RELAX FIRST. Stress is no good.

I have the same problems as CFS, although I haven’t diagnosed with CFS (yet?). Doctors I have saw said “You are young, and the blood test says you are all right. There’s nothing wrong with you.” But I’m not simply cured by their “Oh,I think you’re all right. Blood test says so.” This proved that none of them is Jesus. But this discovery doesn’t help, either.

I have to find ways to deal with my problems. No matter I can find a doctor who is less lame than those doctors I’ve saw or not.

I was really upset by those doctors’ attitudes.(I really want to rant, sorry. If you don’t want to see them, skip it.) They were unable and unwilling to diagnose and help because my blood test showed I was normal. They couldn’t find any causes for my illness, so they just simply assumed I was all right. Many of them even unwilling to hear all of my symptoms(well…I know it’s long). After I told them I was easily tired and had bad headache…etc, they cut in very soon and said something like “Then rest more. You are OK.” or “Try to do more exercise. You are young. There’s nothing wrong with you.” They were not good doctors, not good listeners, either.

valtrex makes me fatigued..but i’ve reduced my life activities and started on it again. i am also starting on Taurine 100 mg daily from Solgar brand and a glutathione topical cream, as prescribed by my doc, a leading researcher in CFS….I hope this helps. I am trying to study and it is so hard..the thoughts leak out of my head..it is hard…

So i am trying valtrex again. I read more on line and they say antiviral is the best way of treating the fatigue and memory loss. My memory loss is shot right now. Really bad. Not sure if it is stress of CFS. Reading maps is insane. I am told or I read the next exit, and by the time i am done reading it or hearing it and i look up, it is as if no one had said anything-i have no clue whatsoever what was said. My singing lessons are difficult at times because i am told what to sing, like la la la ro ro eeee. And I have to write it down otherwise i don’t remember. I hope Valtrex will help. I got off of it because I went on provigil and i was afraid both were too much. I painted ONE room this weekend and I am dead dead dead. My legs are jello. I feel like i am underwater dizzy. I am cold and in bed. I wanted to paint more today..but i can’t..not even get up to go to costco..sigh..someone i know is going through an MS episode..knowing about that worries me since my HHV6 is shared with MS. I was tested further today to check my blood levels. I am awaiting those results. Maybe it will shed some light on the return of my fatigue.

So, four months ago I committed to trying to heal from chronic fatigue; here I am, now, and I’m a lot better! I’ve been healing these four months, and even though I’m not completely better, I really have been getting better all the time. A few conditions have disappeared completely: the yucky dry scabby spots on my upper arms, the sick feeling in my head, the brain fog. The pain and fatigue in my muscles has decreased significantly, and my bladder infections are gone, too. So far, I’ve done two 24 hour fasts and one 36 hour fast, I’ve done a bit of oxygen therapy (before discovering that it wasn’t the best thing for me), a colon cleanse, and a kidney cleanse. I’m currently on the fourth day of a more extended fast; I don’t know how long I’ll do it, but four days is good already. :) Before I started any of this, I changed my diet drastically. I basically eat fruits, vegetables, whole grains, and legumes. The changes in my diet came slowly, one at a time: first I quit diet soda (yucky aspartame and bad dehydrating effects), then I quit regular soda (crazy sugar and chemical badness), then I became vegan (for ethical as well as health reasons), then I quit sugar (it’s pretty awful for you), then I quit refined grains. I love the way I eat now, and I wish I had always eaten this way. I never feel like I’m missing out; part of this also has to do with my mentality. I disagree with diet mentality, and although it may seem like I have a bunch of rules, they’re really just choices I make day to day. In other words, if I want swedish fish, I eat swedish fish! The thing is, allowing myself the freedom to choose what I want to eat makes my choices meaningful, and thus, I rarely eat swedish fish. Anyway, a book that really helped me get out of the diet mentality (one of the largest factors that got me into this mess: eating disorder) was Intuitive Eating, by Evelyn Tribole and Elyse Resch. I highly recommend it. If you’re trying to get into healthy eating in a way that is emotionally healthy, that’s a great book to read.

I got all of my detox strategies from The Detox Book by Bruce Fife, another book which I highly, highly recommend. He really looks at detox from a holistic perspective. It’s not expensive, and SO worth it. I really believe that I will eventually be in better health that I’ve ever been in my life; this means a lot coming from a high-achieving college student who had to leave school and work. I am now taking an online class through the local community college, and I am hoping that I will be able to take more classes (possibly even a full load) next semester.

Healing is not easy, but it’s a hell of a lot better than being sick and getting worse. True healing is also a long journey, a lot longer than a pill that masks your symptoms immediately, but only for about four hours (and gives you sucky side effects). I’ll keep posting as my journey continues. I hope some of you will look into natural detoxing so that you can help your bodies heal themselves!

I was diagnosed with chronic fatigue about six months ago, I have been in denial for the last 5 and a half.

I’ve finally decided I want to do something about it because I’m sick and tired of always being sick and tired and also because I’m addicted to sport but I can’t play anymore. My number one goal at this point in my life is to beat chronic fatigue.

I would like as much help as I can get so if anyone has any suggestions on how to feel better I’d be very appreciative!

Apparently freezing cold baths showers are helpful…

Also how can I tell my friends what’s going on… they don’t really get it.