spread MEN2a awareness

My family has been cursed with this disease.My sister in-law now lays terminally ill from this.There has got to be a way to increase awareness.It is classified a rare disease so not the big headlines as other disease,I would like any info I can garner up as this has become a life changing goal.

Thanks for any help

Peg

MEN2a is Multiple Endocrine Neoplasia Type 2a. It is a rare genetic disorder that causes medullary thyroid cancer in 97% of MEN2a patients, pheochromocytomas (adrenal cancer) in 50% of patients, and hyperparathyroidism in about 10-15%.

Lucky me got all three.

For more information please visit our family site (me and my oldest two kids who have this two) at www.mohmen2a.blogspot.com